Educational Events

Mindfulness Mondays - Mindfulness of Emotions

Virtual ( Zoom )
1:00 pm to 1:30 pm EST
FREE
Woman sitting on the couch drinking coffee

Emotions can be overwhelming, especially for those of us managing a chronic illness. In this session, we will look at how to use mindfulness to tend our emotions and find the wisdom that lives in every feeling.

Speaker

Nico Hase, PhD

There is no charge to attend, but registration is required.

PD Health @ Home is presented by the Light of Day Foundation, whose generosity has made this programming possible.

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This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.

Upcoming Events

Educational Events

Mindfulness Mondays - Mental Wellbeing

Virtual ( Zoom )
1:00 pm to 1:30 pm EST
FREE
Woman sitting on the couch drinking coffee

Join health psychologist, Taylor Rush, PhD, as she explores different dimensions of a mindfulness practice. She will share ways to ground and settle the mind and body. These mindfulness techniques can offer moments of respite and clarity that can be useful throughout your week. Find a comfortable seat and join your mindful Parkinson's community for a special session. Whether this is your first mindfulness Monday, or you are a returning participant, these sessions are created with the intention of including everyone. There will be time for questions following the practice.

Speaker

Taylor Rush, PhD - Health Psychologist, Director of Behavioral Services and Interdisciplinary Programs, Center for Neurological Restoration, Cleveland Clinic

There is no charge to attend, but registration is required.

PD Health @ Home is presented by the Light of Day Foundation, whose generosity has made this programming possible.

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This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.

Upcoming Events

Podcasts

Episode 151: Strategies to Address Apathy and Exercise Motivation

Besides being a movement disorder and affecting other physical functions, such as the digestive system, blood pressure control, and sleep, Parkinson’s disease (PD) can alter cognition, other mental functions, and mood. Apathy can be part of the disease, resulting in a lack of interest, enthusiasm, or motivation. It can result in a vicious cycle, decreasing one’s motivation to exercise and follow medication schedules, which are essential components of managing PD, including mood.

In this episode, movement disorder neurologist Nabila Dahodwala, MD, MS, Director of the Parkinson’s Foundation Center of Excellence at the University of Pennsylvania, describes what apathy is, how it can affect a person’s life, and ways to help alleviate it and gain motivation to move through exercise.

Released: May 30, 2023

Educational Events

Resources for Veterans with Parkinson’s

Virtual ( Zoom )
4:00 pm to 5:30 pm EST
FREE
Veterans Webinar Banner

More than 110,000 veterans with Parkinson’s disease (PD) receive care through the U.S. Department of Affairs (VA).  Many U.S. military veterans with Parkinson’s have access to specialized medical care and financial assistance through the VA. We will explore the resources and support services that Veterans have access to through the VA and the Parkinson’s Foundation.

Speakers

Gretchen Glenn, LCSW
Corporal Michael J. Crescenz VA Medical Center
Philadelphia Parkinson's Disease Research, Education and Clinical Center
Social Worker / Associate Director of Education

Christina Ketron, DNP, APRN, PMHNP-BC
Neurology Services, Nurse Practitioner
Ralph H Johnson VA Medical Center

Mr. Welma James Jackson Jr, MA
Capitol Area Regional Manager
Accreditations, OJT and Department Service Officer (VFW)
Louisiana Department of Veterans Affairs

Shawn Katalinas MSOT, OTR/L
Occupational Therapist
OT Clinical Care Coordinator for Education (CCCE)
Ralph H. Johnson VA Medical Center

There is no charge to attend, but registration is required.

This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.

Upcoming Events

Educational Events

25th Annual Blazing Toward a Cure Educational Symposium

Virtual ( Zoom )
8:30 am to 12:00 pm CDT
FREE

Please join the Vanderbilt Medical Center and Parkinson’s Foundation Center of Excellence team for the 25th annual Blazing Toward a Cure educational symposium. Please register for this no cost educational opportunity.

This program will be held at the Vanderbilt Student Life Center (Nashville, TN), where free valet parking will be available. Doors open at 8 a.m. and the program will begin promptly at 9 a.m. Continental breakfast will be served.

There is no charge to attend, but registration is required. This program is open to people with Parkinson's, their family, friends and the community.

In partnership with Vanderbilt Medical Center, a Parkinson’s Foundation Center of Excellence.

 

COVID SAFETY: The health and safety of our participants, sponsors, volunteers and staff are our top priority. We continue to monitor CDC recommendations and will adhere to state and local COVID guidelines in place on the event day. Adjustments will be made if necessary.

Upcoming Events

Educational Events

Preparing for Your Future: Advance Care Planning, Goals of Care

Virtual ( Zoom )
1:00 pm to 2:00 pm EST
Free
Husband and wife lookin at a tablet while on their porch

Wellness Wednesdays: Palliative Care Series

This program provides helpful tips on preparing for your future and making decisions related to your medical care and treatment. It also covers important questions to ask your medical team and family members about goals of care and planning for the future. This program can help you answer questions such as:

1. What kind of care do I want and why?

2. What might I want in the future related to my care and treatment?

3. How can I tell others what I want in the future related to my medical care?

Speakers

Tom Carroll, MD, PhD, Associate Professor of Medicine, Divisions of General Medicine & Palliative Care, University of Rochester

Andrew Huang, MD, Hospital and Palliative Medicine Fellow, Division of Hospice and Palliative Medicine, University of Rochester Medical Center

There is no charge to attend, but registration is required.

Handout: Preparing for Your Future - Advance Care Planning and Parkinson’s Disease

PD Health @ Home is presented by the Light of Day Foundation, whose generosity has made this programming possible.

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This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.

Upcoming Events

Educational Events

Sing Out Loud

Virtual ( Zoom )
1:00 pm to 2:00 pm EST
Free
Husband and wife lookin at a tablet while on their porch

Wellness Wednesday: Social Engagement Series

The Social Engagement Series will welcome members of the PD community to come together to enjoy art, music, literature and more, as well as an opportunity to meet and socialize with others. Programs will utilize community partners to lead their unique programs focused on social and peer engagement.

Speaker

Alyson Chananie, MS, CCC-SLP, Clinical Consultant/Speech-Language Pathologist
Department of Speech Pathology and Audiology Hackensack Meridian Health JFK Johnson Rehabilitation Institute (Edison NJ)

There is no charge to attend, but registration is required.

Due to the nature of our social engagement programs and to protect the privacy of participants, we will not be recording or archiving these programs. By not recording, it's our hope that the program provides a comfortable environment that encourages meaningful participation.

This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.

PD Health @ Home is presented by the Light of Day Foundation, whose generosity has made this programming possible.

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Upcoming Events

Educational Events

Parkinson's 101: What You and Your Family Should Know

Virtual ( Zoom )
1:00 pm to 2:00 pm EST
Free
Couple sitting on the couch on a tablet

Wellness Wednesday

This program will provide a basic overview of Parkinson’s disease. Learn about what Parkinson’s is, what causes it, common symptoms, treatments, and strategies for managing symptoms.

Speaker

Kelly McWilliams, RN
Nurse Navigator, Corewell Health Movement Disorders
Parkinson’s Foundation Comprehensive Care Center Coordinator

There is no charge to attend, but registration is required.

This is a virtual program, taking place live, using the online Zoom platform. Instructions on joining the webinar are provided after registering.

PD Health @ Home is presented by the Light of Day Foundation, whose generosity has made this programming possible.

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Upcoming Events

Educational Events

Decisiones para el final de la vida

Virtual ( Zoom )
1:00 pm to 2:00 pm EST
Gratis
Una pareja mirando una tableta juntos en su porche

EP Salud en Casa: Miércoles de Bienestar - Decisiones para el final de la vida, planificación anticipada y cuidados paliativos

Regístrese Aquí

Este programa es esencial para todas las personas, ya que aborda temas importantes relacionados con la planificación anticipada y los cuidados paliativos en el proceso de fin de vida.

Aprenderá sobre la importancia de tener conversaciones abiertas y honestas con sus seres queridos y profesionales de la salud para garantizar una atención adecuada y de calidad en los momentos finales de la vida. No pierda la oportunidad de obtener información valiosa y aprender cómo tomar decisiones informadas.

Presentadores

Leslie G. Martinez
Gerente nacional de participación latina
Compassion & Choices

Maria Otero
Directora nacional de participación de la comunidad latina
Compassion & Choices

Este programa es gratuito y está disponible para cualquier persona interesada, incluyendo a las personas con Parkinson y sus familiares, amigos, personas de apoyo y promotores de salud.

¿En busca de algo más? Podrá encontrar todos nuestros videos de EP Salud en Casa- PD Health @ Home en YouTube.


Más información:

Todos los eventos de “EP Salud en Casa-PD Health @ Home" – Parkinson.org/EPSalud.

Una lista de nuestros recursos en español – Parkinson.org/Recursos Línea de Ayuda – 1-800-473-4636, opción 3 para español.

La conferencia se transmitirá en vivo utilizando la aplicación de videollamadas Zoom.

EP Salud En Casa es presentado por Light of Day Foundation, cuya generosidad ha hecho posible esta programación.

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Podcasts

Episode 150: Dispelling Myths of Palliative Care

A common misconception is that palliative care implies hospice, when in fact, palliative care can and should be a component of the treatment of any serious disease, including Parkinson’s. The word “palliation” means providing relief from pain and other symptoms, with a goal of improving quality of life. Individuals receiving palliative care also may receive other treatments, with curative intent if available. On the other hand, palliation can be a part of hospice, but in hospice, a person no longer has curative options or chooses not to pursue them. In this episode, Maggie Ivancic, MSW, LCSWA, the Clinical Social Worker and Parkinson’s Foundation Center of Excellence Coordinator at the University of North Carolina at Chapel Hill, discusses aspects of palliative care – how it differs from hospice, its intent, and how and where to access it.

Released: May 2, 2023

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