One way the Parkinson’s Foundation makes life better for all people in our Parkinson’s disease (PD) community is by providing free resources. We strive to support and empower PD caregivers with the tools, information and services you need to better care for your loved one with Parkinson’s and yourself. These are our top caregiver resources:
This article summarizes the 2018 Caregiver Summit | Cumbre Para Cuidadores presentation “Building Stronger Caregiving Partnerships Through Better Communication” by Angela Roberts, PhD, from Northwestern University, that took place in Phoenix, AZ on December 1, 2018.
"You know I don’t eat in public,” Pat Merryman said to Wanda Patton, who are both heavily involved in the Columbus, OH, Parkinson’s disease (PD) community. They know people in every exercise class and attend every educational program. Pat keeps the Parkinson’s Foundation Ohio program manager’s business card with her to hand them out at every event she attends.
Research from the National Alliance for Caregiving shows that when caregivers are asked what they want, the majority respond saying they want information about coping with being a caregiver. This information takes several forms, including knowledge about Parkinson’s disease (PD), comfort with the caregiving role and managing stress.
The following tips can help you cope:
Learning to take the best care of yourself is caregiver job #1. When you’re a Parkinson’s disease (PD) caregiver, life seems like an endless list of things to do with never enough time to do them. Every day can feel like it goes by in 10 minutes — and lasts two weeks.
Learning how to take care of yourself early in your journey as a Parkinson’s disease (PD) caregiver is more important than you might think. If you’re feeling exhausted, overwhelmed, too stressed to think clearly, then you can’t be at your best, as a person or caregiver.
This quick starter guide for families and caregivers is from Honor. Every person with Parkinson’s disease (PD) is unique — and so is every caregiver. With the right preparation, planning and support, you can do this!
My big sister, Janet Reno, died on November 7, 2016. She lived with Parkinson's disease for 21 ½ years. I have walked that road by her side, but we have not walked that road alone.
It takes a village.
Everyone’s Parkinson's journey is different. Since it is age related, most people die of something else. There is no point dwelling on the last chapter if you are not going to get there.
As a caregiver, what areas of your life can you improve? Take this quiz to narrow it down. Monitor how your risk factors change over time by taking this quiz every few months. Share your results with family and friends so they can better understand the scope of caregiving.
It is difficult to provide broad, yet helpful occupational therapy tips for Parkinson’s disease (PD). As the saying goes, “When you have met one person with Parkinson’s disease, you have met one person with Parkinson’s disease.” The best tip I can give you as an occupational therapist is to find and regularly see an occupational therapist in your area who specializes in skilled therapy treatment for people with Parkinson’s.