My PD Story

My Parkinson’s journey began in 2021. Like many people, I didn’t fully understand what the diagnosis would mean for my future. There were moments of fear, uncertainty, and grief as I realized that everyday things I once took for granted might become more difficult. 

Fatigue, stiffness, and slowing down physically were some of the first signs I noticed. But over time, I realized Parkinson’s disease (PD) was going to change parts of my life — not take away who I am.

I am a wife, a mom of five, a grandmother, a friend, and someone who still finds joy in life’s simple moments. Parkinson’s has taught me to slow down, appreciate the little things, and celebrate victories that may seem small to others. Some days are harder than others, but I’ve learned that joy is still a choice.

One of the biggest blessings in my journey has been community. I became involved with Moving Day Sacramento and created a team called Grace & Grit. That name represents exactly how I try to live my life now — rooted in grace and fueled by grit. Walking alongside others who understand Parkinson’s has reminded me that none of us are alone in this fight.

Through PD GENEration, I participated in a PD research study for the first time. The genetic testing process was very easy and straightforward. I provided a sample, and once the results were available, I was contacted by a genetic counselor who took the time to explain everything to me clearly and compassionately.

Through PD GENEration, I learned that my Parkinson’s is genetic, which gave me some answers but also left me with questions. Unfortunately, because both my parents passed away, I do not know whether the gene came from my maternal or paternal side of the family. At this time, no one else in my family has been diagnosed with Parkinson’s, which makes the diagnosis feel somewhat unexpected for our family.

I shared my results with my family because I want my children to have all the information.

What keeps me hopeful is my family, especially my children and grandchildren. I want them to see that strength does not always look loud or dramatic. 

Sometimes strength simply means showing up, putting one foot in front of the other, and continuing to live life with purpose and hope.

If I could give advice to someone newly diagnosed with Parkinson’s, it would be this: don’t let the diagnosis define you. Allow yourself time to process it, but don’t lose sight of the person you were before PD. Stay active, stay connected, ask for support when you need it, and keep finding things that bring you joy.

Parkinson’s has changed my life, but it has also shown me the incredible power of resilience, friendship, and community. Every step truly matters.

Learn more about ongoing Parkinson’s research and how to join a study today.