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Advanced Caregiving

The Role of Hospice

As Parkinson’s disease (PD) progresses into the advanced stages, its symptoms can often become increasingly difficult to manage. Whether the person with Parkinson’s lives at home, in an assisted living facility or a nursing home, hospice services can optimize their quality of life and that of their family members as well.

Expert Briefings: Challenges of Advanced Parkinson's and Tips for Better Living

Peter Fletcher, M.B.Ch.B., M.Sc. , Consultant Physician, Department of Old Age Medicine, Gloucestershire Hospitals NHS Foundation Trust, UK, and Senior Lecturer and Academy Medical Dean, University of Bristol


  • To view advanced Parkinson's disease for what it is: namely Parkinson's disease that has been present for many years; a triumph of survival


Support Group Guide

This guide takes you through the process of starting, facilitating and maintaining a Parkinson’s support group. Sample meeting guides are included for people with Parkinson’s as well as care partner-only groups.

Caring and Coping

Caring and Coping is a comprehensive guide for caregivers of people with Parkinson’s at any stage. The workbook contains tips and tools to make the caring journey as productive as possible with the least amount of stress. The book focuses on your dual role as a caregiver: caring for someone with Parkinson’s disease, and taking care of yourself.

The book complements our dedication to caregivers of people with Parkinson’s.

Helping the Caregiver Stay Well

As a secondary caregiver your job is to support the primary caregiver.

Whether you are providing support from out of town or acting as a backup when your parent, sibling or friend needs time off, there are many ways you can provide love and support. Stepping into a secondary caregiver role can be a positive and rewarding experience, but it also comes with its own unique challenges. Here are some ways you can be helpful:

Gender Affects Caregiver Support

From the National Parkinson Foundation’s Parkinson Report Fall/Winter 2015

Women with Parkinson’s disease (PD) have a tougher time getting support for their PD issues than men, according to new research from the National Parkinson Foundation’s (NPF) Parkinson’s Outcomes Project.

In a study presented at the American Academy of Neurology Annual Meeting in April, NPF researchers reported that women with PD have fewer informal caregiving resources to rely on and are more likely to use formal, paid caregiving than men.

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