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Caregiver Corner

Caregiver Corner: Thoughts on Parkinson’s by Maggy Hurchalla

Monday, November 21, 2016
Maggy Hurchalla

My big sister, Janet Reno, died on November 7, 2016. She lived with Parkinson's disease for 21 ½ years. I have walked that road by her side, but we have not walked that road alone.

It takes a village.

Everyone’s Parkinson's journey is different. Since it is age related, most people die of something else. There is no point dwelling on the last chapter if you are not going to get there.

Caregiver Corner: Top NPF Resources for Caregivers

Tuesday, November 8, 2016
Vaughn Edelson

In all our programs, NPF aims to make life better for people affected by Parkinson’s disease (PD). Parkinson's not only affects the person who receives the diagnosis — it extends to that person’s family, friends and community. While we pride ourselves on the high quality information and resources we provide for people with Parkinson’s, we also recognize that caregivers need support.

24 Pieces of Advice for Caregivers

Thursday, October 27, 2016
National Parkinson Foundation

November is National Family Caregivers Month. The lively discussion and continued interest from our Caregiver Summit earlier this year showed us that simply put, caregivers need more help. We have gone through our many caregiver-focused articles, webpages, Facebook and forum posts to find some of the best pieces of advice for caregivers:

Caregiver Corner: Finding an Occupational Therapist for Your Loved One… and You!

Wednesday, July 27, 2016
Charissa Richter, MOTR, and Jana Underhill

It is difficult to provide broad, yet helpful occupational therapy tips for Parkinson’s disease (PD). As the saying goes, “When you have met one person with Parkinson’s disease, you have met one person with Parkinson’s disease.” The best tip I can give you as an occupational therapist is to find and regularly see an occupational therapist in your area who specializes in skilled therapy treatment for people with Parkinson’s.  

Caregiver Corner: Thank You for Asking About my Husband

Thursday, July 21, 2016
Lori Ann Greidanus

My 35-year-old husband has Young Onset Parkinson’s Disease (YOPD). It sucks. I’m often asked, “How’s Todd?” or “How’s your husband’s health?” or “Is Todd staying healthy?” Thank you for asking about my husband. I’m happy to say he’s doing pretty darn good, considering he has a progressive neurological disease and we don’t know what the future holds. No, he does not have dementia, a question I was asked last week. Yes, we are planning to stay in our two-story house for a while.