Blog Introduction Text
Welcome to the National Parkinson Foundation's blog, where you can keep up-to-date on the latest research, read about what's hot in the Parkinson's community, learn caregiving tips and more.
Monday, November 21, 2016
My big sister, Janet Reno, died on November 7, 2016. She lived with Parkinson's disease for 21 ½ years. I have walked that road by her side, but we have not walked that road alone.
It takes a village.
Everyone’s Parkinson's journey is different. Since it is age related, most people die of something else. There is no point dwelling on the last chapter if you are not going to get there.
Thursday, November 17, 2016
Who has the highest risk of injury among people with Parkinson’s disease (PD)? Is there a connection between medication combinations and falling less? Are prescription antipsychotics safe? Earlier this year, NPF presented four posters at the World Parkinson Congress (WPC) that answered these questions and more.
Tuesday, November 8, 2016
In all our programs, NPF aims to make life better for people affected by Parkinson’s disease (PD). Parkinson's not only affects the person who receives the diagnosis — it extends to that person’s family, friends and community. While we pride ourselves on the high quality information and resources we provide for people with Parkinson’s, we also recognize that caregivers need support.
A surprising fact about Deep Brain Stimulation (DBS) surgery technology is that human DBS leads (the wire implanted in the brain and connected to the neurostimulator) and their four shiny, tiny contacts have not really changed much over the last two decades. One reason for the durability of DBS lead design has been the long-term beneficial effects of using this simple approach.
Thursday, November 3, 2016
With the recent news of Tim Tebow's father being diagnosed with Parkinson's disease (PD), the National Parkinson Foundation (NPF) asked our Facebook followers if they had any advice for Tim or his father, Bob. To our surprise, in less than three hours we received more than 300 insightful comments with first-hand advice to the Tebow family, that can be applied to all families and people who have received a recent PD diagnosis.
Thursday, October 27, 2016
November is National Family Caregivers Month. The lively discussion and continued interest from our Caregiver Summit earlier this year showed us that simply put, caregivers need more help. We have gone through our many caregiver-focused articles, webpages, Facebook and forum posts to find some of the best pieces of advice for caregivers:
Thursday, October 20, 2016
As a caregiver, what areas of your life can you improve? Take this quiz to narrow it down. Monitor how your risk factors change over time by taking this quiz every few months. Share your results with family and friends so they can better understand the scope of caregiving.
Wednesday, October 19, 2016
Because the 4th World Parkinson Congress (WPC) was held stateside, in Portland, OR, the National Parkinson Foundation (NPF) sent multiple staff members from headquarters and our Centers of Excellence. For the people living with Parkinson’s disease (PD), their caregivers, non-profits and pharmaceutical companies in attendance, WPC was an eye-opening experience.
Preparing for extreme weather is a burden for anyone in a storm’s path. People with Parkinson’s disease (PD) and their caregivers should take these tips into consideration to ensure that all PD-related needs are accounted for when preparing for Hurricane Matthew or any other natural disaster:
Ted Dawson, PhD, and colleagues at the Johns Hopkins University, a National Parkinson Foundation Center of Excellence, have uncovered a potential new approach to treat Parkinson’s disease (PD). Researchers in Dawson’s laboratory focused on a protein called lymphocyte-activation gene 3, known as LAG3. This protein has been shown to be important in cell to cell transfers of α-synuclein (Lewy bodies), which is a protein found in the brain of a person with PD.