Because the 4th World Parkinson Congress (WPC) was held stateside, in Portland, OR, the National Parkinson Foundation (NPF) sent multiple staff members from headquarters and our Centers of Excellence. For the people living with Parkinson’s disease (PD), their caregivers, non-profits and pharmaceutical companies in attendance, WPC was an eye-opening experience.
Blog Introduction Text
Welcome to the National Parkinson Foundation's blog, where you can keep up-to-date on the latest research, read about what's hot in the Parkinson's community, learn caregiving tips and more.
Preparing for extreme weather is a burden for anyone in a storm’s path. People with Parkinson’s disease (PD) and their caregivers should take these tips into consideration to ensure that all PD-related needs are accounted for when preparing for Hurricane Matthew or any other natural disaster:
Ted Dawson, PhD, and colleagues at the Johns Hopkins University, a National Parkinson Foundation Center of Excellence, have uncovered a potential new approach to treat Parkinson’s disease (PD). Researchers in Dawson’s laboratory focused on a protein called lymphocyte-activation gene 3, known as LAG3. This protein has been shown to be important in cell to cell transfers of α-synuclein (Lewy bodies), which is a protein found in the brain of a person with PD.
While reviewing data from the National Parkinson Foundation’s (NPF) Parkinson’s Outcomes Project a year ago, I noticed a participant whose quality of life went from pretty good to terrible, then back to pretty good. I wondered, “what happened here?” The answer: psychosis.
A recent press release from the National Institutes of Neurological Disorders and Stroke detailed exciting ongoing work aimed to uncover magnetic resonance imaging (MRI) techniques capable of tracking Parkinson’s disease (PD) progression. In this month’s What’s Hot in PD? column we will review the recent progress of MRI-based biomarkers for Parkinson’s diagnosis and progression, and discuss the importance of the findings, especially in the context of clinical trials.
Previous What’s Hot blogs have addressed the promise and challenge of developing biomarkers for Parkinson’s disease (PD). Several groups of researchers have been working on blood and imaging biomarkers to provide more information on Parkinson’s: diagnosis, prediction, monitoring and methods to measure progression. In this month’s What’s Hot blog, we examine a new approach that utilizes a urine sample to detect the presence of Parkinson’s disease activity.
It is difficult to provide broad, yet helpful occupational therapy tips for Parkinson’s disease (PD). As the saying goes, “When you have met one person with Parkinson’s disease, you have met one person with Parkinson’s disease.” The best tip I can give you as an occupational therapist is to find and regularly see an occupational therapist in your area who specializes in skilled therapy treatment for people with Parkinson’s.
My 35-year-old husband has Young Onset Parkinson’s Disease (YOPD). It sucks. I’m often asked, “How’s Todd?” or “How’s your husband’s health?” or “Is Todd staying healthy?” Thank you for asking about my husband. I’m happy to say he’s doing pretty darn good, considering he has a progressive neurological disease and we don’t know what the future holds. No, he does not have dementia, a question I was asked last week. Yes, we are planning to stay in our two-story house for a while.
A French group presented data at the 20th International Congress of Parkinson’s Disease and Movement Disorders in Berlin Germany last month. Their results suggested a strong link between farming, pesticides and risk of Parkinson’s disease. Sofiane Kab and her colleagues demonstrated that living in rural French regions with more crops was a high risk for the later developing Parkinson’s. The authors noted that these are typically regions where vineyards are located.
Summer is the time for long drives, late sunsets and the outdoors. However, direct and prolonged exposure to the summer sun can also result in sunburns and over time, skin cancer. Skin cancer is the most common cancer in the U.S. and it is even more of a threat for people with Parkinson’s disease (PD) because they have a higher risk of developing malignant melanoma. Skin cancer is preventable. Taking proper precautions and knowing what to look for can save your life.