"You know I don’t eat in public,” Pat Merryman said to Wanda Patton, who are both heavily involved in the Columbus, OH, Parkinson’s disease (PD) community. They know people in every exercise class and attend every educational program. Pat keeps the Parkinson’s Foundation Ohio program manager’s business card with her to hand them out at every event she attends.
It might be surprising to learn that 20 to 30 percent of people with Parkinson’s disease (PD) will experience visual hallucinations. While typically not a symptom of PD itself, they can develop as a result to a change in PD medication or as a symptom of an unrelated infection or illness. It is important to know the signs of hallucinations and how to manage them.
2018 is here. A new year is a wonderful opportunity to start fresh and set new personal goals. This year, we did the hard work for you and listed four attainable New Year’s resolutions we know you can achieve this year.
For the newly diagnosed person with Parkinson’s
Tom manages his Parkinson's disease (PD) symptoms by staying active, eating right and working with his health care team. He recently admitted to his doctor that when his wife isn't home he sometimes forgets to take his medication. His doctor recommended setting an alarm and using a pill organizer.
Eleanor was sitting at her friend Margaret’s house when she noticed a dog sniffing around the couch. She asked Margaret when she got the dog. Margaret said she didn’t have a dog. Eleanor realized she must be experiencing what her doctor warned her about when he increased her Parkinson’s disease (PD) medication dosage: hallucinations. She called her doctor that afternoon.
Before Miguel was diagnosed with Parkinson’s disease (PD) he often experienced anxiety. He retired early, but his anxiety would keep coming back, aggravating his tremor and making his thoughts race. His doctor started him on an antidepressant and referred him to a psychiatrist who taught Miguel coping skills, allowing him to better manage his anxiety. Miguel now lives a more normal life.
The Edmond J. Safra National Parkinson’s Wellness Initiative extends Parkinson’s care beyond the walls of the clinic. It uses a unique, medical-community partnership approach – pairing a Jewish Community Center (JCC) with a Parkinson’s Foundation Center of Excellence – to create inclusive, welcoming community hubs for people affected by Parkinson’s around the country. This video highlights how deeply impactful the program is for people with Parkinson’s and their care partners.
Not everyone with Parkinson’s develops hallucinations or delusions, but there are some things that can increase your risk. Learn more, from Psychosis: A Mind Guide to Parkinson’s.
Practical tips for caregivers from Psychosis: A Mind Guide to Parkinson’s.
My Parkinson’s spouse has many physicians, as PD has taken its toll on so much of his body. I go to most his medical appointments as I am his constant observer, and I am the one fighting for his health. I have decided to write about having a voice when speaking with physicians as I find this extremely important, not only for me to be aware, but most importantly for him to get the best care as possible.