Understanding Medicare: Tips for Caregivers

Date
Author
Parkinson's Foundation

Understanding Medicare can be extremely frustrating for many seniors — there are so many parts involved, so many details that require research and potential changes to health care providers and their services, that some seniors become overwhelmed and find it hard to keep searching for the right coverage. As a caregiver, there are many things you can do to help the process along.

Category
Tips for Daily Living

Hallucinations and Delusions in Parkinson’s Disease

Date
Author
Erica Hornthal

It might be surprising to learn that 20 to 30 percent of people with Parkinson’s disease (PD) will experience visual hallucinations. While typically not a symptom of PD itself, they can develop as a result to a change in PD medication or as a symptom of an unrelated infection or illness. It is important to know the signs of hallucinations and how to manage them.   

Category
Research Round Up

Caregiver Corner: Having a Voice When Speaking with Your Loved One’s Physicians

Date
Author
Jane H Davis

My Parkinson’s spouse has many physicians, as PD has taken its toll on so much of his body. I go to most his medical appointments as I am his constant observer, and I am the one fighting for his health. I have decided to write about having a voice when speaking with physicians as I find this extremely important, not only for me to be aware, but most importantly for him to get the best care as possible.

Category
Caregiver Corner

Center of Excellence Series: Muhammad Ali Parkinson Center’s Powerful Caregiver Programs

Date
Author
Parkinson's Foundation

The Muhammad Ali Parkinson Center at Barrow Neurological Institute in Phoenix, AZ, a Parkinson's Foundation Center of Excellence, shares its namesake's passion for helping the underserved. The center recognizes that caregivers are often the unsung heroes when it comes to Parkinson's care and so MAPC is committed to caring for caregivers.

Category
Center of Excellence Series

Caregiver Corner: Thoughts on Parkinson’s by Maggy Hurchalla

Date
Author
Maggy Hurchalla

My big sister, Janet Reno, died on November 7, 2016. She lived with Parkinson's disease for 21 ½ years. I have walked that road by her side, but we have not walked that road alone.

It takes a village.

Everyone’s Parkinson's journey is different. Since it is age related, most people die of something else. There is no point dwelling on the last chapter if you are not going to get there.

Category
Caregiver Corner

Caregiver Summit 2016: Embracing The Challenge: A Panel Discussion

While there are many common experiences, each person’s Parkinson’s caregiving journey is unique. Tony Borcich, LCSW, led a discussion among three caregivers with diverse outlooks on and approaches to caregiving, including both spouse and adult child perspectives. 

Julie Beck’s husband was diagnosed with young-onset PD in 2002. She still works full-time and takes care of their three kids. 

Rick Bentley’s father was diagnosed with PD in 2007 and passed away in 2016. During those years, Rick helped advocate for his father from afar. 

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