Hospital Care Kits

Advocate for your best care with the Aware in Care kit.

Parkinson's Foundation staff at booth talking about kits
Aware in Care hospital safety kit

Research has found that three out of four people with Parkinson’s disease (PD) do not receive medications on time when staying in the hospital. When this occurs two out of three will experience unnecessary complications.

With more frequent hospital visits and a high sensitivity to the timing and dosing of PD medications, people with Parkinson’s face great risks in the hospital.

At the Parkinson’s Foundation, it is our mission to help people with Parkinson’s disease live better lives, and that includes staying safe while in the hospital. We help people with PD be “Aware in Care,” which means they:

  • Understand the risks associated with hospital stays.
  • Have tools to play an active role in their care.
  • Are prepared for a hospital visit, whether planned or unplanned.
  • Have a plan to get the best possible care in the hospital.

Three easy ways to get these life-saving resources:

Option 1: Download the free printable resources below.
This does not include the kit bag, bracelet or magnet. We recommend that you designate a bag to keep this information along with your medication in its original bottles for use in the hospital

Option 2: Order the free Aware in Care Packet.
This includes the Wallet Card, Nurse Fact Sheet Tear Off Pad and Medication Form. It does not include the Hospital Action Plan, kit bag, bracelet, magnet or specialty resources (Duopa & Deep Brain Stimulation Cards). We recommend that you designate a bag to keep this information along with your medication in its original bottles for use in the hospital.

Option 3: Order the full Aware in Care Kit, free with an $8 shipping charge.
This includes the full kit (see below for all contents), including a zippered pouch used to store all information and your medication in its original bottles for use in the hospital.

Contents of Aware in Care kit

Kit Contents

The Aware in Care kit is filled with useful tools and information to help a person with Parkinson’s during their next hospital visit, planned or unplanned. Download the following kit items for print:

Hospital Action Plan

This plan will help you prepare for your next hospital visit.

Hospital Care Fact Sheet

Share vital information about Parkinson’s with every member of your care team in the hospital.

Medical Alert Card

Fill in your card with emergency contact information and place it in your wallet.

Medication Form

Complete this form and keep copies in your kit for use at the hospital. If you download the form, you can fill it out on your computer before you print it out.

Deep Brain Stimulation Info Card

If you have had a deep brain stimulator implanted, share this information with anyone providing medical care to you in the hospital.

Duopa Info Card

If you use the Duopa pump, share this information with anyone providing medical care to you in the hospital.

Spanish Medication Form

Complete this form and keep copies in your kit for use at the hospital. If you download the form, you can fill it out on your computer before you print it out.

Hospitalization During COVID-19 Doctor Letter

Please ask your primary Parkinson’s care provider to sign this letter, which highlights the impact that infections can have on Parkinson’s symptoms and the importance of adherence to the Parkinson’s medication schedule.

To print key pages from the Hospital Action Plan, the Hospitalization During COVID-19 Doctor Letter, the Medication Form, Fact Sheet for Nurses and the Medical Alert Card from a single PDF, click here.

The following items can only be obtained by ordering a physical kit:

  • Parkinson’s ID Bracelet: Wear your bracelet at all times in case you are in an emergency situation and cannot communicate.
  • Magnet: Use this magnet to display a copy of your Medication Form in your hospital.

Interested in having an Aware in Care Ambassador speak to your group?

Parkinson’s Foundation Aware in Care Ambassadors are a trained group of people with PD, clinicians, health professionals, care partners and loved ones of those with PD. Ambassadors are well equipped to talk to clinicians, aging professionals, support groups and many others about the kit and hospitalization safety for people with PD. If you are interested in inviting an Ambassador to speak to your group (in person or virtually), please email HospitalCare@Parkinson.org for more information.

Aware In Care Logo
Karen Anderson
MY PD STORY: Karen Anderson

"The Aware in Care kit is a life-saver; as a person with Parkinson’s or a caregiver, you have a role to play in advocating for your own quality care."

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