Overview: Parkinson’s disease (PD) is a chronic, progressive neurologic disorder, with a disease trajectory of decades in many cases. Research over the last 15-20 years, shows that the gradual loss of patient autonomy has a negative impact on the life of the caregiver resulting in decreased mental and physical health and decline in quality of life. Utilizing existing research, this online seminar will provide a framework for assessing caregiver strain and identifying potential interventions. One model intervention will be described, i.e. the use of PHOTOVOICE to assist caregivers in talking about difficult issues they face.
OBJECTIVES: At the conclusion of this webinar, the participant will be able to:
- Discuss research related to caregivers of those with PD.
- Recognize factors or variables which may influence caregiver strain.
- Contemplate interventions which may assist caregivers in coping with their role.
- Become familiar with the use of PHOTOVOICE, an intervention to assist caregivers in discussing difficult topics.
Julie Carter, MS, RN, ANP
Professor of Neurology
Oregon Health Sciences University
Ms. Carter is a nurse practitioner and Professor of Neurology at Oregon Health and Science University. She joined the department of neurology in 1979 and was one of the original founders of the Parkinson Center of Oregon (PCO). Ms. Carter has dedicated her career to improving the lives of people with Parkinson’s disease and their families. She approaches Parkinson’s disease as a family centered disease and brings a family centered emphasis to her practice. She has been an investigator in multiple clinical trials and is an original member of the Parkinson Study Group.
Throughout her career she has valued the importance of a team-based approach in the care of people with Parkinson’s disease and their families. Since 2002 she has been part of the Parkinson’s Foundation Allied Team Training Program (ATTP) faculty which provides national training to health care professional teams on best practices.
In 2016 Ms. Carter received the distinguished contribution to the PD community award given by the World Parkinson Disease Coalition (WPC).
Joyce Bredesen, DNP, PHN, RN
Metropolitan State University
St. Paul, MN
Dr. Joyce Bredesen is a tenured Associate Professor of Nursing at Metropolitan State University in St. Paul, Minnesota. She teaches undergraduate and graduate public health nursing theory and clinicals in the pre-licensure and degree completion programs. Her research interest includes PhotoVoice, working with vulnerable populations, and research on women’s health care access in underserved communities. Joyce has done presentations internationally on her work with Photovoice. Her most recent work with PhotoVoice has been with Parkinson’s disease; working with both care partners and support groups. Dr. Bredesen presented her research at the World Parkinson’s Congress in 2013 in Montreal and 2016 in Portland.
Gwyn M. Vernon, MSN, CRNP, RN
Co-Founder and National Director of The Edmond J. Safra Visiting Nurse Faculty Program at Parkinson's Foundation