Podcast Episode 44: Talking to Children About Parkinson's

PD Library thumbnail

Receiving a diagnosis of Parkinson’s disease, especially when it occurs at an early age, can be seen as disrupting an entire life plan. But it doesn’t have to. Soania Mathur, MD, CCFP, a family physician in Toronto, Canada, was diagnosed with young onset PD at age 27, just when she was starting her own medical career, as well as starting a family. She has developed some views on raising children when a parent or other family member has PD. In this second episode of our two-part Holiday Series: Families and Parkinson’s, she offers advice about how to talk to children about the disease, where to turn for resources, and even how having a parent, grandparent, or other relative with a chronic disease can have positive aspects for a child.

Download This Episode

Related Resources

Want More?

Don't forget to subscribe! There are many ways to listen: Apple PodcastsGoogle PlayTuneIn (Amazon Echo), Spotify or RSS Feed. (Need help subscribing? See our quick guide.)

For all of our Substantial Matters podcast episodes, visit parkinson.org/podcast.

About This Episode

Released: December 18, 2018

Soania Mathur, MD, CCFP

Dr. Soania Mathur is a family physician living outside of Toronto, Canada who had to resign her practice as a result of her Young Onset Parkinson's Disease 12 years after her diagnosis at age 27. Now she is a dedicated speaker, writer, educator and Parkinson's advocate. She speaks passionately about the challenges of adjusting physically and emotionally and the coping strategies available to patients.

Dr. Mathur is an active speaker in Canada and the US at patient-directed conferences.  She works with The Michael J. Fox foundation for Parkinson’s Research and serves as Co-chair of their Patient Council.  She serves on the Board of Directors for the Davis Phinney Foundation, is a member of The Brian Grant Foundation Advisory Board, the Medical Advisory Board for Parkinson Canada and also works with Parkinson’s Movement UK on North American initiatives.  Dr. Mathur has valued her involvement with World Parkinson Congress as a speaker and committee member. Locally she is a member of the Board of Directors for the Lakeridge Health Foundation.  She has authored a number of published papers and online pieces and is a regular contributor to Huffington Post Blog.  She is the founder of Designing A Cure Inc., which was created to raise awareness of Parkinson's and now serves as a platform to educate and inspire those living with this disease to take charge of their lives. Dr. Mathur has a special interest in helping educate the youngest affected by the stress of this chronic disease. To help facilitate dialogue between children and their loved ones, she has authored two books: “My Grandpa’s Shaky Hands” and “Shaky Hands – A Kid’s Guide To Parkinson’s Disease”. All proceeds from the sales of these books (available on Amazon) will be donated to support Parkinson’s research and other efforts that serve the PD community.

X
 

Sign Up for Our E-Newsletter

Get the latest news about PD research, resources and community initiatives – straight to your inbox.

Please enter a valid email

Skip step



Invalid year format. Eg: 2020
Skip step
Skip step


*Please note that not all content is available in both languages. If you are interested in receiving Spanish communications, we recommend selecting “both" to stay best informed on the Foundation's work and the latest in PD news.

Skip step

Thanks for Signing Up

We are proud to have you as a part of our community. To ensure you receive the latest Parkinson’s news, research updates and more, please check your email for a message from us. If you do not see our email, it may be in your spam folder. Just mark as “not spam” and you should receive our emails as expected.

mail icon

Subscribe here to get the latest news on treatments, research and other updates.