Care partners have an essential role in helping to make life better for people with Parkinson’s disease (PD), and the Parkinson’s Foundation recognizes that taking care of the care partner enables them to be at their best. The 2021 Care Partner Summit | Cumbre Para Cuidadores is recommended for anyone caring for someone living with PD. It will be held online on several days in May in English with Spanish translations available two weeks later. Beginning in June, a set of self-paced online courses will offer videos, journal prompts, and opportunities to connect with care partners around the world about topics of importance so that care partners can better understand their role in managing their loved one's care, create actionable strategies for self-care, develop clear networks for support, and access relevant tools that will empower them in their role as a care partner.
In this podcast, care partner Marlene Perdan relates her journey with her husband, Bill, who received a PD diagnosis at age 51. She tells about her initial shock and fears and how she came to terms with the disease, and about their journey together, using information and knowledge to help them deal with changing situations. Marlene has been involved with the PD community and serves on the committee for the Care Partner Summit.
- Care Partner Summit | Cumbre Para Cuidadores
- Living with Parkinson’s: For Caregivers
- Caring and Coping: A Care Partner’s Guide to Parkinson’s Disease (book)
- Top 10 Essential Caregiver Resources (blog)
About This Episode
Released: April 20, 2021
Marlene Perdan is a Licensed Massage Therapist, Board Certified Polarity Practitioner, and Holistic Health Practitioner. She holds certifications in Elemental Reflexology, and as a Sound Therapy Practitioner. Marlene is a Reiki Master and Licensed Spiritual Healer. She owns her own business, and her areas of focus are massage, energy work, oncology massage, reflexology and chair massage for businesses and groups. Marlene has previously worked for over ten years at a leading nonprofit organization providing health and human service information to the community. She has obtained a Masters of Public Administration and a Certificate in Nonprofit Management from Cleveland State University and a Bachelor’s of Science in Family Studies with a minor in Women’s Studies from the University of Kentucky.
Marlene’s journey as a care partner began in 2009 when her husband Bill was diagnosed at the age of 51.
For more insights on this topic, listen to our podcast episode “Caring for Loved Ones with Parkinson’s Disease.”
For all of our Substantial Matters podcast episodes, visit parkinson.org/podcast.