 ## Breadcrumb

- [Home](/)
- [Living with Parkinson's](/living-with-parkinsons)
- [My PD Story](/living-with-parkinsons/stories)
 
  ## Breadcrumb

- [Home](/)
- [Living with Parkinson's](/living-with-parkinsons)
- [My PD Story](/living-with-parkinsons/stories)
 
  

 

  # My PD Story

 

   ![Herbert Wennink headshot](/sites/default/files/styles/470x550/public/images/Herbert-Wennink.jpg?h=c9aea1bc&itok=03TzkX2R)  

 People with PD 

##  Herbert Wennink 

 

  I was 56 when I was diagnosed with Parkinson's disease (PD). Now, almost 10 years later, I look back on how the disease has affected my life but also how I continue to adapt. I never thought I’d be at the gym so much, or that I’d have to take early retirement, but I have learned that I am resilient and that even as the disease progresses, I can still have a great deal of joy in my life.

A few months before being [diagnosed](/understanding-parkinsons/getting-diagnosed "Getting Diagnosed"), I noticed symptoms of Parkinson’s, such as a small [tremor](/understanding-parkinsons/movement-symptoms/tremor "Tremor") in my hand and a [loss of smell](/understanding-parkinsons/non-movement-symptoms/loss-of-smell "Loss of Smell"). At the urging of my wife, I saw my primary care doctor, who suspected Parkinson’s. I then saw a general neurologist who confirmed the diagnosis.

I sought a second opinion at [Northwestern Medicine Parkinson’s Disease and Movement Disorders Center](https://www.nm.org/conditions-and-care-areas/neurosciences/movement-disorders?utm_source=nm.org%2Fparkinsons&utm_medium=vanity&utm_campaign=parkinsons) because it is a Parkinson’s Foundation [Center of Excellence](https://www.parkinson.org/living-with-parkinsons/finding-care/global-care-network#Centers). Northwestern Medicine Neurologist Danny Bega, MD, confirmed my diagnosis and created a personalized treatment plan addressing not only medications, but also lifestyle changes and [exercise](/living-with-parkinsons/treatment/exercise "Exercise") to manage symptoms and enhance my quality of life.

A central element of my life is attending Rock Steady Boxing classes specifically designed for people with Parkinson’s. I also attend Parkinson’s-specific ping pong, golf and Second City Improv classes. Who knew Parkinson’s could be so funny? Many of these initiatives have received [Parkinson’s Foundation community grants](/resources-support/community-grants "Community Grants").

The Parkinson’s Foundation has been a key resource for providing me and my family with ongoing education. I found the [Hospital Safety Guide](/library/books/hospital-safety-guide "Hospital Safety Guide") to be helpful when I was diagnosed and continue to use it as a resource. Each year, I attend the Parkinson’s Disease Patient and Caregiver Symposium, co-hosted by the Parkinson’s Foundation and Northwestern Medicine, to stay updated on treatments and research. Through the Foundation’s events like [Moving Day](https://movingdaywalk.org/events/) walks and Parkinson's Players activities, I have found support, camaraderie and a sense of belonging.

My journey with Parkinson’s disease has taught me many things. One is that Parkinson’s isn’t limited to older adults; **it affects people of all ages and can happen to anyone**.

 ![Herbert Wennink on a hike](/sites/default/files/styles/380x361/public/images/Herbert-Wennink-hike.jpg?itok=nvqMH7PA)  I’ve also learned to celebrate milestones. I’ve been living with Parkinson’s for nearly a decade, and every year that my symptoms are managed is a milestone. I appreciate that I have been able to live well enough to take several international trips with my wife and daughter since my diagnosis.

I am proud to have stuck with a vigorous exercise program over the years, and it’s paying off. I have definitely learned that exercise equals medicine, and the community of supportive coaches and friends is invaluable. I hope fellow people with PD will approach this disease with a positive attitude and a commitment to being active — and keep pushing to live the best life possible.

**Learn more about the [Northwestern Medicine Parkinson's Disease and Movement Disorders Center](https://www.nm.org/conditions-and-care-areas/neurosciences/movement-disorders?utm_source=nm.org%2Fparkinsons&utm_medium=vanity&utm_campaign=parkinsons).**

**Find the Parkinson’s exercise class that works for you! For virtual options, explore our** [Fitness Friday videos](https://www.parkinson.org/resources-support/online-education/pdhealth#ff)**. For in-person classes, visit your** [local chapter’s webpage](/resources-support/find-your-chapter "Find Your Chapter") **or call our** [Helpline](/resources-support/helpline "Helpline") **at 1-800-4PD-INFO (1-800-473-4636).**

  ##  Related Materials 

   Fact Sheets 

###  [ Occupational Therapy &amp; Parkinson's ](/library/fact-sheets/occupational-therapy) 

 

 [Read Now](/library/fact-sheets/occupational-therapy) 

 Fact Sheets 

###  [ Nutrition and PD ](/library/fact-sheets/nutrition) 

 

 [Read Now](/library/fact-sheets/nutrition) 

 Audiobooks 

###  [ Fitness Counts: A Body Guide to Parkinson’s Disease ](/library/audiobooks/fitness) 

 

 [Listen Now](/library/audiobooks/fitness) 

 

  ##  More Stories 

 from the Parkinson's community

   ![Edwin Castillo headshot](/sites/default/files/styles/340x400/public/images/edwin-castillo-pd-story-hero.jpg?h=c9aea1bc&itok=i2krUKZL)  

 People with PD 

###  [ Edwin Castillo ](/living-with-parkinsons/stories/edwin-castillo) 

  READ NOW  

 

 ![Tamara posing for a picture in a blue dress](/sites/default/files/styles/340x400/public/images/tamara-zanvardine-pd-story-hero.jpg?h=c9aea1bc&itok=T3TnAZYR)  

 People with PD 

###  [ Tamara Zanvardine ](/living-with-parkinsons/stories/tamara-zanvardine) 

  READ NOW  

 

 ![Gary Krajewski headshot](/sites/default/files/styles/340x400/public/images/gary-krajewski-pd-story-hero.jpg?h=c9aea1bc&itok=jbMtYx20)  

 People with PD 

###  [ Gary Krajewski ](/living-with-parkinsons/stories/gary-krajewski) 

  READ NOW  

 

 

 [VIEW ALL STORIES](/living-with-parkinsons/stories) 

  

 

 ###  PD Health @ Home 

 Join us for new, weekly virtual wellness programs! Take part in one or all of our events that cover: mindfulness, interviews with experts and guided exercise.

 [VIEW EVENTS](/resources-support/online-education/pdhealth) 

 

 

 ###  Share your Story 

 Do you have an experience with Parkinson's that you would like to share?

 [SUBMIT YOUR STORY](/living-with-parkinsons/my-pd-story/submit) 

 

 

 

 - Share on Facebook
- Share on X
- Share on LinkedIn