Being a care partner can be a fulfilling but stressful role. Care partners may experience feelings of frustration and self-deprecation. Ignoring these experiences can lead to burnout, and eventually, compassion fatigue.
Parkinson's Today Blog
Every November, the Parkinson’s Foundation joins with organizations across the country to honor care partners for National Family Caregivers Month. This year, we are reminding care partners about the importance of caring for themselves while caring for a loved one with Parkinson’s.
Read our 10 meaningful ways you can #BeASelfCareGiver this month:
From renowned singer Linda Ronstadt to former NBA player Brian Grant, the faces of Parkinson’s disease (PD) are as diverse as the symptoms.
In the context of the COVID-19 pandemic, telehealth medicine has emerged as an essential tool for accessing healthcare. This trend has led to increased demand for evidence-based digital treatments, known as digital therapeutics. In response to the demand, the development of digital therapeutics is being fast-tracked in the scientific research community and utilized among people with Parkinson’s disease (PD).
What challenges are people with Parkinson’s disease (PD) facing and how can research help improve their lives? In our latest Neuro Talk, Parkinson's Foundation Chief Scientific Officer James Beck, PhD, outlines top findings from the largest-ever clinical study of Parkinson’s disease, the Parkinson’s Outcomes Project. This study captures the experiences of people with Parkinson’s and their care partners over time, to identify new and better ways to provide care and manage Parkinson’s disease.
After reading all 10 early signs of Parkinson’s disease, perhaps you notice you or your loved one is experiencing several symptoms. What should you do next?
As a neuroscience professor, Kathy Steece-Collier, PhD, bridges the gap between basic research and treatment. For more than three-decades, her focus on Parkinson’s disease has brought a better understanding of the disease and increased hope for improved treatment. Yet before choosing a path in neuroscience, Dr. Steece-Collier considered a career in special education.
Though every person living with Parkinson’s disease (PD) experiences symptoms and progression differently, there are standard phases of advancement, known as stages.
Every year, the top neurologists, researchers and experts around the world join together to discuss the latest research and treatments in the Parkinson’s disease (PD) field at the MDS Virtual Congress 2021 hosted by the International Parkinson and Movement Disorders Society. This year, the Parkinson’s Foundation presented six key findings in research, care and education at the international congress.
Every ethnic group across the globe is impacted by Parkinson’s disease (PD). However, most of the PD genetic information that is studied by scientists has primarily been collected from people of European and East Asian ancestry. In fact, as of 2018, only 1.3% of study participants in the genome-wide association study (GWAS) Catalog data are Latino. With Parkinson’s on the rise on a global scale, the importance of increasing the genetic diversity of research participants is of utmost importance.