Parkinson's Today Blog

The Latin phrase sine qua non translates into ‘without which, there is nothing.’ People with Parkinson’s disease (PD) who participate in research are the sine qua non of the research team. Marilyn Neault is the first-ever person with Parkinson’s who is helping the Parkinson’s Foundation guide its Parkinson’s Outcomes Project, the largest clinical study of Parkinson’s. As a steering committee member, she voices the viewpoints of people with Parkinson’s as they relate to the groundbreaking study.

Incidence of Parkinson’s disease (PD) increases with age, but an estimated four percent of people with PD are diagnosed before the age of 50. This is known as Young-onset Parkinson's disease (YOPD).

Everyone who faces Parkinson’s disease (PD) is a fighter — from the people confronting their symptoms every minute to the advocates raising PD awareness. However, there is one group of people whose fight often goes unnoticed: care partners. We are here for you.

To have a good night’s sleep, we should work to create healthy habits and a sleep routine. Just as you brush your teeth to maintain good dental health, there are things you can do to improve nighttime sleep and daytime alertness.

Regardless of where your loved one is on their Parkinson’s disease (PD) journey, you are the only one who can define “caregiving.” Especially following a new diagnosis, you might not feel like you are actually “giving” care. Similarly, your loved one might not see himself or herself as someone in need of care. But remember, care is not limited to physical tasks. Care can be emotional and spiritual as well as physical.

Parkinson’s disease (PD) is neurodegenerative disorder characterized, in part, by the clumping of the protein alpha-synuclein. These clumping proteins are called Lewy Bodies that can be found in an area of the brain stem where dopamine cells die. However, we do not know exactly how the two are connected. Researchers believe that better understanding this connection would help us develop optimal targeted therapies to treat PD. 

Over the next three years the Parkinson’s Foundation will invest more than $50 million to Parkinson’s disease (PD) research and clinical care. At the heart of our research initiatives are scientists and researchers who have received Foundation awards to improve our understanding of Parkinson’s, which will ultimately lead us to a cure.

Diane M. Ellis, MSN, RN, CCRN is a clinical assistant professor at Villanova University M. Louise Fitzpatrick College of Nursing and Edmond J. Safra Nurse Faculty Scholar.

Everyone processes a Parkinson’s disease (PD) diagnosis differently. Navigating a range of emotions — from relief to despair — can feel overwhelming. Built on community, the Parkinson’s Foundation is here to support people newly diagnosed with Parkinson’s and their care partners now and at every stage of their journey.

Our Parkinson’s disease (PD) community inspires us every day.