Top 10 Essential Caregiver Resources

Navigating Parkinson’s disease (PD) is a life-long process for care partners, but you don’t have to do it alone. We’re here for you with these top 10 caregiver resources:

  1. Helpline

Our Helpline specialists answer all Parkinson’s and care partner questions, provide emotional support and refer health care professionals. Call 1-800-4PD-INFO (1-800-473-4636) or email Helpline@parkinson.org.

  1. Caring and Coping

This comprehensive guidebook was written for care partners at every stage of PD. The workbook contains tips and tools to make the caregiving journey as productive as possible with the least amount of stress.

  1. Podcast

As a caregiver, it is important to stay up-to-date on Parkinson’s. Listen to our podcast, Substantial Matters: Life and Science of Parkinson’s, as we cover PD treatments, research and techniques to help you and your loved one live better every day. Subscribe or listen online.

  1. Parkinson.org/Caregivers

From beginning your care partner journey to caring for someone with advanced PD, our articles are devoted to helping you navigate all stages of PD. 

  1. Videos for Care Partners

Our YouTube playlist features tips, interviews with care partners, advice for those caring for a loved one with advanced Parkinson's and more. You can also view our 2020 Care Partner Summit videos highlighting mental health and cognitive changes. 

  1. Care Partner Courses

This set of one-of-a-kind self-paced online courses offers videos, journal prompts and opportunities to connect with care partners about the topics that are most important to you. Enroll now in our Care Partner Program: Building a Care Partnership.

  1. Expert Briefings

Find out what leading PD doctors and other experts have to say through our Expert Briefings webinar series.

  1. Support Group Guide

Still looking for a caregiver support group that works for you? Start your own with our support group manual.

  1. PD Library

Parkinson’s knowledge is power! Visit our PD Library for our vast collection of free publications and fact sheets.

  1. Hopsitalization Kit

Our Aware in Care kit helps care partners ensure their loved one gets the best possible care while in the hospital, whether the visit is planned or unplanned. Order or download your kit in English or Spanish.

 

For more information about caregiving visit Parkinson.org/Caregiving.

 

For more insights on this topic, listen to our podcast episode “The Care Partner Experience.”

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Caregiver Corner
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