## Breadcrumb - [Home](/) - [Advancing Research](/advancing-research) - [Our Research](/advancing-research/our-research) - [PD GENEration: Powered by the Parkinson’s Foundation](/advancing-research/our-research/pdgeneration) ## Breadcrumb - [Home](/) - [Advancing Research](/advancing-research) - [Our Research](/advancing-research/our-research) - [PD GENEration: Powered by the Parkinson’s Foundation](/advancing-research/our-research/pdgeneration) # PD GENEration Instructions ## 💡 Quick Summary - This page provides key resources — videos, instructions and study documents — to help participants complete[ PD GENEration](/advancing-research/our-research/pdgeneration "PD GENEration: Powered by the Parkinson’s Foundation") genetic testing, whether at a clinic or at home using the Tasso+ blood collection kit. - It includes IRB-approved materials such as the informed consent form, study protocol, instructional videos, written guides, FAQs and step-by-step support for collecting and shipping samples safely and accurately. - How to access additional help, including contacting the [Parkinson’s Foundation Helpline](/resources-support/helpline "Helpline"), for guidance on enrollment, sample collection and study participation. ![Care partner doing Tasso+ blood kit into individuals arm](/sites/default/files/styles/no_sizing/public/images/Study_Resources.jpg?itok=0AhRD3I_) Thank you for your interest in participating in the Parkinson’s Foundation [PD GENEration: Powered by the Parkinson’s Foundation](https://www.parkinson.org/advancing-research/our-research/pdgeneration) study. These key resources are designed to help you participate in PD GENEration. They include instructional videos and study information. If you have additional questions about how to participate after reviewing the information below, please email the PD GENEration team at or call our Helpline at 1-800-4PD-INFO (1-800-473-4636). ### Introduction to PD GENEration Video This video introduces you to the Parkinson’s Foundation PD GENEration study and covers the general concepts in genetics, the scope of genetic testing offered through PD GENEration and some of the implications of genetic testing. ### PD GENEration Study Documents The below key documents and protocols have been approved by the study’s Institutional Review Board. These documents are used by our team to help conduct the PD GENEration study. **Regulatory Documents** - [Informed Consent Form](/sites/default/files/documents/PDGene_Master_ICF_Jan2025.pdf "PDGene_Master_ICF_Jan2025.pdf") - [Study Protocol](/sites/default/files/documents/PDGENE_Protocol_2024.pdf "PDGENE_Protocol_2024.pdf") ## Study Consent Video - [Spanish](https://youtu.be/aYsbb6k0xHI) - [French (CAN)](https://youtu.be/jM8hFsOfYXQ) - [Portuguese](https://youtu.be/4URnK_HhEr0) - [Hebrew](https://youtu.be/R9r-mIZI-0M) ## Tasso+ Kit Video [En español](/espanol/investigacion/pdgeneration/recursos-estudio "Instrucciones para PD GENEration") PD GENEration samples are collected using a Tasso+ kit if you are participating at home. Watch the videos below before using the Tasso+ kit. These videos are designed to help you successfully complete your sample collection at home. You can either watch a person with Parkinson’s or a care partner use the kit to help a person with Parkinson’s. If you have questions or need assistance after watching a video, please contact the live proctoring service using the card included in your kit. ### Person with Parkinson’s [View written instructions with photos](/sites/default/files/documents/Tasso-person-with-pd-instructions-updated.pdf "Tasso-person-with-pd-instructions-updated.pdf") ### Person with Parkinson’s with a Care Partner [View written instructions with photos](/sites/default/files/documents/Tasso-with-care-partner-instructions-updated.pdf "Tasso-with-care-partner-instructions-updated.pdf") ### Additional Tasso+ documents - [**FAQ:** ](/sites/default/files/documents/Tasso-FAQ-2026.pdf "Tasso-FAQ-2026.pdf")This document answers the top questions people with Parkinson’s and their families have about using the Tasso+ kit. - [**Instruction Manual:**](/sites/default/files/documents/Tasso_Instruction_Manual.pdf "Tasso_Instruction_Manual.pdf") This instruction manual included in your Tasso+ kit provides step-by-step written instructions on how to successfully complete your sample collection. - [**FedEx Pick-up Postcard:**](/sites/default/files/documents/Tasso-FedEx-pick-up.pdf "Tasso-FedEx-pick-up.pdf") This postcard included in your Tasso+ kit explains how you can schedule a same day pick up for shipping your blood sample to our laboratory. - [Parkinson’s Foundation Helpline Postcard:](/sites/default/files/documents/Tasso-Helpline-Postcard.pdf "Tasso-Helpline-Postcard.pdf") This postcard included in your Tasso+ kit provides information on the [Parkinson’s Foundation Helpline](/resources-support/helpline "Helpline"), such as how to contact them and how they can assist you. - ### PD GENEration Study Recruitment Materials Below are PD GENEration recruitment postcards that are representative of different populations of people with Parkinson’s. ![Asian/Asian American Option 1 PD GENE Postcard](/sites/default/files/styles/no_sizing/public/images/PDGene-Postcard-AsianAmerican-1.png?itok=NAm6tOaB) [Download now](/sites/default/files/documents/PDGene-Postcard-AsianAmerican.pdf "PDGene-Postcard-AsianAmerican.pdf") ![Asian/Asian American Option 2 PD GENE Postcard](/sites/default/files/styles/no_sizing/public/images/PDGene-Postcard-AsianAmerican-2.png?itok=AM1ZD642) [Download now](/sites/default/files/documents/PDGene-Postcard-AsianAmerican-2.pdf "PDGene-Postcard-AsianAmerican-2.pdf") ![Black/African American PD GENE Postcard](/sites/default/files/styles/no_sizing/public/images/PDGene-Postcard-Black-AfricanAmerican.png?itok=Y_dtlAjf) [Download now](/sites/default/files/documents/PDGene-Postcard-AfricanAmerican.pdf "PDGene-Postcard-AfricanAmerican.pdf") ![Hispanic PD GENE Postcard](/sites/default/files/styles/no_sizing/public/images/PDGene-Postcard-Hispanic-English.png?itok=Iao8FAru) [Download now](/sites/default/files/documents/PDGene-Postcard-Hispanic-English.pdf "PDGene-Postcard-Hispanic-English.pdf") ![Native American Option 1 PD GENE Postcard ](/sites/default/files/styles/no_sizing/public/images/PDGene-Postcard-NativeAmerican-1.png?itok=LMEVcyDd) [Download now](/sites/default/files/documents/PDGene-Postcard-NativeAmerican-1.pdf "PDGene-Postcard-NativeAmerican-1.pdf") ![Native American Option 2 PD GENE Postcard](/sites/default/files/styles/no_sizing/public/images/PDGene-Postcard-NativeAmerican-2.png?itok=fO9G4orw) [Download now](/sites/default/files/documents/PDGene-Postcard-NativeAmerican-2.pdf "PDGene-Postcard-NativeAmerican-2.pdf") ![Pacific Islander PD GENE Postcard](/sites/default/files/styles/no_sizing/public/images/PDGene-Postcard-PacificIslander.png?itok=6OLq90Im) [Download now](/sites/default/files/documents/PDGene-Postcard-PacificIslander.pdf "PDGene-Postcard-PacificIslander.pdf") ![White/Caucasian PD GENE Postcard](/sites/default/files/styles/no_sizing/public/images/PDGene_Postcard-Caucasian-White.png?itok=7jxZwsw5) [Download now](/sites/default/files/documents/PDGene_Postcard-Caucasian-White.pdf "PDGene_Postcard-Caucasian-White.pdf") ### Find Local Support Find your nearest Parkinson's Foundation chapter for local events, support groups, care facilities and more. 10 Miles 25 Miles 50 Miles 100 Miles 250 Miles ### Share Your Experience Did you participate in PD GENEration, our international genetics research study? We’d love to hear your story. [SUBMIT YOUR STORY](/living-with-parkinsons/my-pd-story/submit) - Share on Facebook - Share on X - Share on LinkedIn