The Hispanic Parkinson’s Advisory Council, comprised of healthcare professionals, researchers, members of the community and people with PD, develops strategies to increase clinical research education, awareness and participation among Hispanic people with Parkinson’s throughout the United States, with specific focus on Parkinson’s Foundation studies: PD GENEration: Mapping the Future of Parkinson’s Disease and the Parkinson's Outcomes Project. This unique pilot initiative aims to increase participation in these two projects by ten percent through:
- Developing educational materials and organizing outreach events specific to the Hispanic community living with PD;
- Disseminating lessons learned and measures of success in engaging the Hispanic community through scientific publications; and
- Surveying the Hispanic community to further understand their needs and gaps in care.
Members
Ignacio Mata, PhD (Principal Investigator)
Assistant Professor of Molecular Medicine, Cleveland Clinic Lerner College of Medicine
Maria DeLeon, MD
Neurologist, Person with PD and Advocate, Texas
George Dumenigo, MSW, LCSW
Social Worker, University of Miami
Camila Gadala-Maria
Senior Manager, Professional Education, Parkinson’s Foundation
Adriana Gonzalez, MSW, LCSW
Social Worker, University of California San Diego
Priscila Delgado Hodges, CGC
Licensed Genetics Counselor, Indiana University School of Medicine
Rebeca De Leon, Parkinson’s Foundation
Manager of Clinical Research, Parkinson’s Foundation
Irene Litvan, MD, FAAN, FANA
Professor of Neuroscience and Director of the Center for Parkinson’s and Other Movement Disorders, University of California San Diego
Claudia Martinez, MD
Hispanic Outreach Coordinator, Muhammad Ali Parkinson Center - Barrow Neurological Institute
Adolfo Ramirez-Zamora, MD
Associate Professor of Neurology, Head of the Movement Disorders Department, University of Florida
Ruby Rendon
Hispanic Outreach Coordinator, Muhammad Ali Parkinson Center - Barrow Neurological Institute
Rossy Cruz Vicioso, MD
Neurologist, Internist, Parkinson’s and Movement Disorder Specialist, Cardio-Neuro-Ophthalmological and Transplant Center (CECANOT), CEDIMAT, Neurotraining; Clínica Unión Médica del Norte, Dominican Republic
Honorary Members
Anna Naito, PhD, Parkinson’s Foundation
Associate Vice President, Research Programs
Karlin Schroeder, MA, Parkinson’s Foundation
Associate Vice President, Community Engagement
Collaborators
HPAC is honored to further collaborate with various institutions that serve the Hispanic community:
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