The PD GENE Latino Advisory Committee, comprised of healthcare professionals, researchers, community members and people with PD, works with the Parkinson’s Foundation to develop strategies to increase clinical research education, awareness and participation among Hispanics and Latinos with Parkinson’s throughout the U.S. and the Caribbean. The committee focuses on Parkinson’s Foundation studies, including PD GENEration: Mapping the Future of Parkinson’s Disease and the Parkinson's Outcomes Project. This unique pilot initiative aims to increase participation in these two projects by ten percent. To date, the PD GENE Latino Advisory Committee has helped the Foundation to:
- Develop educational materials and organizing outreach events specific to the Hispanic community living with PD;
- Disseminate lessons learned and measures of success in engaging the Hispanic community through scientific publications;
- Survey the Hispanic community to further understand their needs and gaps in care; and
- Expand PD GENEration for the first time outside the continental U.S. and into the Caribbean.
Members
Ignacio Mata, PhD (Principal Investigator)
Investigator at the Institute for Genomic Medicine, Cleveland Clinic and Assistant Professor of Molecular Medicine at the Cleveland Clinic Lerner College of Medicine (CCLCM) of Case Western Reserve
Priscila Delgado Hodges, CGC
Licensed Genetics Counselor, Indiana University School of Medicine
Maria DeLeon, MD
Retired Neurologist, Medical writer
Adriana Gonzalez, MSW, LCSW
Social Worker, University of California San Diego
Ruby Rendon
Hispanic Outreach Coordinator, Muhammad Ali Parkinson Center - Barrow Neurological Institute & PD GENEration Coordinator
Rossy Cruz Vicioso, MD
Neurologist, Internist, Parkinson’s and Movement Disorder Specialist, Cardio-Neuro-Ophthalmological and Transplant Center (CECANOT), CEDIMAT, Neurotraining; Clínica Unión Médica del Norte, Dominican Republic
Adriana Jiménez
Program Director Promotores Embajadores de Parkinson/CEO Give for a Smile
Blanca Valdovinos, MD
Assistant Professor Neurology, Movement Disorders University of Rochester
Henry Moore, MD
Assistant Professor of Clinical Neurology, Division of Parkinson’s disease and Movement Disorders, University of Miami – Miller School of Medicine
Ino Reyes
Businessman and Hispanic Community Leader Living with Parkinson
Nora Vanegas-Arroyave, MD
Assistant Professor of Neurology, PDCMDC Baylor College of Medicine Baylor College
Gerson Suárez Cedeño, MD
Assistant Professor of Neurology Movement Disorders University of New Mexico
Camila Gadala-Maria
Senior Manager of Professional Education, Parkinson’s Foundation
Rebeca De Leon
Senior Manager of Clinical Research, Parkinson’s Foundation
Jenny Peralez
Clinical Research Coordinator, Department of Neuroscience, Movement Disorders Center, Altman Clinical Research Institute (ACTRI)
Anny Coral-Zambrano
PD GENE Research, Parkinson’s Foundation
Collaborators
The PD GENE Latino Advisory Committee is honored to further collaborate with various institutions that serve the Hispanic community:
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