Hispanic Parkinson’s Advisory Council

The Hispanic Parkinson’s Advisory Council, comprised of healthcare professionals, researchers, members of the community and people with PD, develops strategies to increase clinical research education, awareness and participation among Hispanic people with Parkinson’s throughout the United States, with specific focus on Parkinson’s Foundation studies: PD GENEration: Mapping the Future of Parkinson’s Disease and the Parkinson's Outcomes Project. This unique pilot initiative aims to increase participation in these two projects by ten percent through: 

  • Developing educational materials and organizing outreach events specific to the Hispanic community living with PD;
  • Disseminating lessons learned and measures of success in engaging the Hispanic community through scientific publications; and
  • Surveying the Hispanic community to further understand their needs and gaps in care.

Members

Ignacio Mata, PhD (Principal Investigator)  
Assistant Professor of Molecular Medicine, Cleveland Clinic Lerner College of Medicine 

Maria DeLeon, MD
Neurologist, Person with PD and Advocate,  Texas

George Dumenigo, MSW, LCSW
Social Worker, University of Miami

Camila Gadala-Maria
Senior Manager, Professional Education, Parkinson’s Foundation

Adriana Gonzalez, MSW, LCSW
Social Worker, University of California San Diego

Priscila Delgado Hodges, CGC
Licensed Genetics Counselor, Indiana University School of Medicine

Rebeca De Leon, Parkinson’s Foundation
Manager of Clinical Research, Parkinson’s Foundation

Irene Litvan, MD, FAAN, FANA
Professor of Neuroscience and Director of the Center for Parkinson’s and Other Movement Disorders, University of California San Diego 

Claudia Martinez, MD
Hispanic Outreach Coordinator, Muhammad Ali Parkinson Center - Barrow Neurological Institute

Adolfo Ramirez-Zamora, MD
Associate Professor of Neurology, Head of the Movement Disorders Department, University of Florida 

Ruby Rendon
Hispanic Outreach Coordinator, Muhammad Ali Parkinson Center - Barrow Neurological Institute

Rossy Cruz Vicioso, MD
Neurologist, Internist, Parkinson’s and Movement Disorder Specialist, Cardio-Neuro-Ophthalmological and Transplant Center (CECANOT), CEDIMAT, Neurotraining; Clínica Unión Médica del Norte, Dominican Republic

Honorary Members

Anna Naito, PhD, Parkinson’s Foundation
Associate Vice President, Research Programs

Karlin Schroeder, MA, Parkinson’s Foundation
Associate Vice President, Community Engagement 

Collaborators

HPAC is honored to further collaborate with various institutions that serve the Hispanic community:

Cleveland Clinic

 

Baylor College of Medicine
Cecanot

 

Cedimat

 

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