Study Leadership

These individuals work to make life better for people with Parkinson’s through their leadership and participation in the PD GENEration study.

Principal Investigator

  • Roy N. Alcalay, MD, MS, Alfred and Minnie Bressler Associate Professor of Neurology at Columbia University Irving Medical Center and Parkinson’s Foundation Scientific and Parkinson’s Foundation Scientific Advisory Board Member

Members of the Steering Committee

  • Anne Hall, JD, Parkinson’s Foundation Research Advocate, Member of FDA Patient Engagement Collaborative, Research Stakeholder, University of California, San Francisco, Member of International Parkinson and Movement Disorder Society Task Force on Genetic Testing in Parkinson’s Disease 
  • Karen S. Marder, MD, MPH, Sally Kerlin Professor of Neurology and Chief of the Division of Aging and Dementia at Columbia University Irving Medical Center
  • Martha Nance, MD, Medical Director at Park Nicollet Struthers Parkinson’s Center and Clinical Professor of Neurology at the University of Minnesota
  • Michael A. Schwarzschild, MD, PhD, Professor of Neurology at Harvard Medical School, Director of Molecular Neurobiology Laboratory at Massachusetts General Hospital, and Chair of the Executive Committee of the Parkinson Study Group
  • Tanya Simuni, MD, Chief of the Division of Movement Disorders and Arthur C. Nielsen, Jr., Professor of Neurology at Northwestern University Feinberg School of Medicine
  • Anne-Marie A. Wills, MD, MPH, Neurologist and Director of the CurePSP Center of Care at Massachusetts General Hospital, Co-Director of the Genes and Environment Working Group of the Parkinson Study Group
  • Cynthia J. Casaceli, MBA, Director of the Clinical Trials Coordination Center at University of Rochester (ex officio)

In partnership with: Parkinson Study Group

  • Michael A. Schwarzschild, MD, PhD, Chair of the Executive Committee
  • Hubert H. Fernandez, MD, Co-Chair of the Executive Committee and James and Constance Brown Family Endowed Chair in Movement Disorders at Cleveland Clinic

Clinical Sites

  • PSG: Parkinson Study Group
  • Parkinson’s Foundation Centers of Excellence

Genetic Testing

Genetic Counseling
Indiana University School of Medicine

University of Rochester

Data Storage
University of Florida

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