Resources for Support Group Leaders

As a support group leader, you are a vital part of the global Parkinson’s community and we are here for you. Below you’ll find an outline of the resources we have available to the Parkinson’s community and ways that you can utilize them within your support group. 

Fact Sheets

View fact sheets at Parkinson.org/Library for information on specific PD symptoms, management and more. Fact sheets are available in English, Spanish and Mandarin Chinese. 

Aware in Care Parkinson’s Hospital Kit

The Aware in Care Parkinson's hospital kit protects, prepares and empowers people with Parkinson’s before, during and after a hospital visit. It contains tools and information to share with hospital staff during a planned or emergency hospital visit.

An Aware in Care Ambassador may be able to visit your group (in person or virtually) to present about preparing for a hospitalization. Contact Courtney Malburg at CMalburg@Parkinson.org  for more information 

Webinars and Video Content 

Expert Briefings webinars offer first-hand access to Parkinson's research and care leaders. Each free, hour-long online seminar provides practical tips for managing PD from experts.

PD Health at Home is a virtual community that hosts weekly events for the PD community covering mindfulness, fitness and topics important to the PD community.

All of our videos are available in our PD Library and searchable by topic.

Podcasts

Tune into our podcast, Substantial Matters: Life and Science of Parkinson’s. Parkinson's experts highlight treatments and techniques to help you live well now and explore current research to bring you a better tomorrow. Episodes focus on a range of topics, including medication delivery methods, exercise, clinical trials and nutrition. 

Encourage group members to listen in between support group meetings and consider designating time in each meeting to discuss anything they learned

Books

Browse our extensive library of Parkinson's disease publications to find, order or download information on PD symptoms, diagnosis, treatment, research and ways to live well. 

Request a group set of the books by emailing Courtney at CMalburg@Parkinson.org and consider purchasing a set of books through Kindle which can be virtually lent to any support group member

Helpline

Parkinson's Foundation Helpline Information Specialists help people with PD, caregivers and healthcare providers navigate every aspect of Parkinson's, offering emotional support, sharing current PD-related medical information and guiding callers to local resources. 

The Helpline is available at (800) 4PD-INFO (473-4636) or Helpline@Parkinson.org.

If a group member has a question that you don’t know the answer to, a call or email to the Parkinson’s Foundation Helpline is the easiest way to find the answer!

PD Conversations

Join our online community to find specific answers and talk to others going through similar experiences. Be part of a network of support as you connect with others in one of our discussion groups: newly diagnosed, symptoms, caregiving, Español and more. 

Chapter Network

The Parkinson’s Foundation’s 17 Chapters covering all 50 States provide people with Parkinson's disease (PD) and caregivers access to local resources and services, including Support Groups, Health and wellness classes and Education Programs. Visit Parkinson.org/Chapters to find your local chapter. If you don’t see your support group listed on the chapter page, or details need to be updated, you can provide updated information here. Be sure to see the “Our Local Impact” section of your chapter webpage to see how the Parkinson’s Foundation has invested in research, better care, education and empowerment near you.

For more insights on this topic, listen to our podcast episode “Support Group Benefits and How to Start One.”

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