Every other Tuesday, we bring you a new episode of Substantial Matters: Life and Science of Parkinson’s. Host Dan Keller, PhD, interviews Parkinson’s experts to highlight the treatments and techniques that can help you live a better life now, as well as the research that can bring a better tomorrow. Episodes focus on a range of topics relevant to your daily life, including new levodopa delivery methods, exercise, clinical trials, nutrition and more!
To get started, listen to the episodes in the following playlist, or learn more about each episode below.
In this podcast episode, Dr. Tanya Simuni, Chief of Movement Disorders at the Northwestern University Feinberg School of Medicine in Chicago and Dr. Michael Schwarzschild, director of the Molecular Neurobiology Laboratory at Massachusetts General Hospital in Boston, discuss some aspects of clinical studies in PD and why it is important for people with PD to participate in them. Both institutions are Parkinson’s Foundation Centers of Excellence.
In this podcast episode, Dr. Martha Nance, medical director of the Struthers Parkinson’s Center in Minneapolis, Minnesota, a Parkinson’s Foundation Center of Excellence, talks about some of the genes related to PD that are under investigation, how they work, and what their effects are, both biologically and in terms of how they may influence the course of the disease.
The Parkinson’s Foundation has recently initiated the PD GENEration study, which will ultimately recruit and provide genetic testing and counseling to 15,000 people with PD to investigate the relationship between genes and PD. In this podcast episode, Certified Genetic Counselor Jenny Verbrugge, MS, CGC of Indiana University, a Parkinson’s Foundation Center of Excellence, discusses the role of genetic counseling and the value of home genetic tests versus those performed by a clinical laboratory.
In this podcast episode, neurologist and lead investigator, Dr. Roy Alcalay of Columbia University, a Parkinson’s Foundation Center of Excellence, and patient advocate Anne Hall give some background on the PD GENE genetics initiative. With the aim of uncovering genes and mechanisms responsible for PD, the Parkinson’s Foundation initiated PD GENEration: Mapping the Future of Parkinson’s Disease, a study to look at the genes of 15,000 people with PD and correlate those findings with disease symptoms, progression, and response to treatments.
In this podcast episode, Parkinson’s Foundation Chief Scientific Officer Dr. Jim Beck describes the goals of the PD GENERation study, how genes affect the course of the disease, and ultimately, how the results of the study may empower people to take better control of their disease.