Podcast: Substantial Matters

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Every other Tuesday, we bring you a new episode of Substantial Matters: Life and Science of Parkinson’s. Host Dan Keller, PhD, interviews Parkinson’s experts to highlight the treatments and techniques that can help you live a better life now, as well as the research that can bring a better tomorrow. Episodes focus on a range of topics relevant to your daily life, including new levodopa delivery methods, exercise, clinical trials, nutrition and more!

Subscribe: Apple PodcastsGoogle PlayTuneIn (Amazon Echo) or Spotify. You can also subscribe here via RSS Feed. (Need help subscribing? See our guide for help.)

To get started, listen to the episodes in the following playlist, or learn more about each episode below.

Tell us what you think about the podcast here!

Click here to listen to our Spanish episodes

Podcast Episode 109: Medication Timing

In this podcast episode, Dr. Indu Subramanian, Director of the Parkinson’s Disease Research, Education and Clinical Center at the West Los Angeles Veterans Affairs Medical Center, discusses what has been learned about the timing of the initiation of therapy. She also provides strategies for getting the most benefit from medications.

Bonus Episode en Español: Deshaciendo la barrera del idioma con una clínica hispana

In our ongoing efforts to reach all communities whose members may be affected by Parkinson's disease, this week's episode will be in Spanish. We will return with more English language podcasts in two weeks. In this episode, we speak with neurologist María Luisa Moro about her work in developing Connecticut’s first Parkinson’s clinic dedicated to serving the Spanish-speaking community.

Podcast Episode 108: The Golden Year for Testing Disease Modifying Drugs

In this podcast episode, Dr. Robert Hauser, Director of the Parkinson’s Disease and Movement Disorders Center at the University of South Florida in Tampa, defines the “Golden Year” for people with Parkinson’s disease to participate in disease modifying clinical trials, offers messages for patients and providers, and tells how a system of referral to entry into clinical trials can work.

Podcast Episode 107: Advocating for a Safe Hospitalization

In this podcast, Rose Lang, an Aware in Care Ambassador for the Parkinson’s Foundation, recounts a challenging hospital visit after her husband, John, fell and broke his hip. She discusses the difficulties of getting medication on time during a hospital stay, and the importance of informing and educating hospital staff about caring for someone with PD.

Podcast Episode 106: Tremors: Coping & Treatment Options

In this podcast episode, movement disorders neurologist Dr. Muhammad Nashatizadeh of the University of Kansas Medical Center, a Parkinson’s Foundation Center of Excellence, discusses several ways to control tremor. Looking beyond today’s therapies, one of his research objectives is to identify new treatment options for debilitating movement disorders.

Podcast Episode 105: How Movement Disorders Fit into the Palliative Care Model

In this second podcast of our two-part series on palliative care and hospice, Adriana Gonzalez, talks about the benefits of palliative care, the ongoing relationship of the care team with the patient and family, and how this form of care can specifically address the needs of people with Parkinson’s disease.

Bonus Episode en Español: Cuidando del cuidador

In our ongoing efforts to reach all communities whose members may be affected by Parkinson's disease, this week's episode will be in Spanish. We will return with more English language podcasts in two weeks. In this episode, we speak with Alma Aragon, caregiver of her husband Carlos Aragon, diagnosed with Parkinson's disease four years ago. Alma shares her experience as a caregiver and how she has handled the ups and downs of the trip with her husband, with whom she has been married to for 25 years.

Podcast Episode 104: Hospice Care and the Myths Surrounding It

This podcast is the first of a two-part series on hospice and palliative care. In this first episode, Jessica Shurer, MSW, LCSW, Clinical Social Worker and Center Coordinator of the Movement Disorders Center at the University of North Carolina at Chapel Hill, a Parkinson’s Foundation Center of Excellence, helps to dispel some of the misunderstanding about hospice.

Podcast Episode 103: Best Practices & Guidance: Navigating Assisted Living and Skilled Nursing Facilities

In this podcast episode, Joan Gardner, BSN, nurse clinician, and Rose Wichmann, PT, director of the Struthers Parkinson’s Center in the Minneapolis area, a Parkinson’s Foundation Center of Excellence, explore many of the issues that are central to choosing an assisted living or skilled nursing facility as well as ensuring the best experience once someone resides there.

Podcast Episode 102: The Care Partner Experience

In this podcast, care partner Marlene Perdan relates her journey with her husband, Bill, who received a PD diagnosis at age 51. She tells about her initial shock and fears and how she came to terms with the disease, and about their journey together, using information and knowledge to help them deal with changing situations.

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