Podcast: Substantial Matters

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Every other Tuesday, we bring you a new episode of Substantial Matters: Life and Science of Parkinson’s. Host Dan Keller, PhD, interviews Parkinson’s experts to highlight the treatments and techniques that can help you live a better life now, as well as the research that can bring a better tomorrow. Episodes focus on a range of topics relevant to your daily life, including new levodopa delivery methods, exercise, clinical trials, nutrition and more!

Subscribe: Apple PodcastsGoogle PlayTuneIn (Amazon Echo) or Spotify. You can also subscribe here via RSS Feed. (Need help subscribing? See our guide for help.)

To get started, listen to the episodes in the following playlist, or learn more about each episode below.

Tell us what you think about the podcast here!

Click here to listen to our Spanish episodes

Podcast Episode 103: Best Practices & Guidance: Navigating Assisted Living and Skilled Nursing Facilities

In this podcast episode, Joan Gardner, BSN, nurse clinician, and Rose Wichmann, PT, director of the Struthers Parkinson’s Center in the Minneapolis area, a Parkinson’s Foundation Center of Excellence, explore many of the issues that are central to choosing an assisted living or skilled nursing facility as well as ensuring the best experience once someone resides there.

Podcast Episode 102: The Care Partner Experience

In this podcast, care partner Marlene Perdan relates her journey with her husband, Bill, who received a PD diagnosis at age 51. She tells about her initial shock and fears and how she came to terms with the disease, and about their journey together, using information and knowledge to help them deal with changing situations.

Bonus Episode en Español: Preguntas frecuentes acerca de la telemedicina

In our ongoing efforts to reach all communities whose members may be affected by Parkinson's disease, this week's episode will be in Spanish. We will return with more English language podcasts in two weeks. In this episode, we speak with Dr. Adolfo Ramirez-Zamora about telemedicine, how it works, and how to overcome potential obstacles.

Podcast Episode 101: Support Group Benefits and How to Start One

In this episode, Allison Allen and Anne Kosem, both licensed clinical social workers, talk about their experiences and relate some of their knowledge derived from their years facilitating support groups.

Podcast Episode 100: Nutrition Advice - Part 2

In this second of two episodes with Dr. John Duda, he tells what he recommends about diet and nutrition for his Parkinson’s patients, including when to look for organically grown produce.

Bonus Episode en Español: Cuidado de largo plazo y directivas anticipadas

In our ongoing efforts to reach all communities whose members may be affected by Parkinson's disease, this week's episode will be in Spanish. We will return with more English language podcasts in two weeks. In this episode, Pamela Rodrigueznos, a financial planner, explains the importance of advance directives and the steps necessary to prepare a realistic budget and adequate financial plan for long-term care.

Podcast Episode 99: Nutrition Advice - Part 1

In this podcast, Dr. Duda explains what a whole foods diet is, how it differs from a standard American diet, and how people can reliably and comfortably change the way they eat.

Podcast Episode 98: How to Talk about Impulse Control Disorders

In this podcast, Dr. Gregory Pontone, Director of the Parkinson’s Neuropsychiatry Clinic at Johns Hopkins School of Medicine, a Parkinson’s Foundation Center of Excellence, discusses forms of ICD’s, some means to recognize them, and tools for communicating about them.

Podcast Episode 97: Understanding Bradykinesia and Dyskinesia

In this podcast episode, neurologist Dr. Benjamin Walter describes how bradykinesia and dyskinesia can affect people’s lives, what people can do for themselves to alleviate the discomfort, how they can work with their neurologist to minimize the disorders, and what is in development to help.

Bonus Episode en Español: Acerca del Consejo para personas con Parkinson, o el ‘People with Parkinson’s Council’, de la Parkinson’s Foundation

In our ongoing efforts to reach all communities whose members may be affected by Parkinson's disease, this week's episode will be in Spanish. We will return with more English language podcasts in two weeks. In this episode, we hear from Alejandra Borunda, member of the Parkinson's Foundation People with Parkinson's Council. Alejandra shares her experience as a member along with her goals to best reach the Hispanic community throughout her role.

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