Call Our HELPLINE: 1-800-4PD-INFO (473-4636)

Who Can Use the Kit

I Have Parkinson’s
I Am a Care Partner
I Am a Support Group Leader
I Work in a Hospital
I Am an Educator
I Am a Clinician

I Have Parkinson’s

If you are living with Parkinson’s disease, you know that preparation is essential to making the most of each day.

Your new Aware in Care kit will help you prepare for your next hospital stay. The tools and information in your kit will also help protect you when you travel or in case of an emergency situation.

The Parkinson’s Foundation recommends you take the following steps:

  • Order your free kit here or call our helpline at 1-800-4PD-INFO to learn more.
  • Read the Hospital Action Plan booklet. Take the time to understand how to use each item in your kit and how to prepare for either a planned or emergency hospital visit.
  • Pack your Aware in Care kit. Add an emergency contact list, an extra supply of your Parkinson’s medications in their original bottles, a completed Medication Form and a copy of your healthcare proxy card.
  • Put the Medical Alert Card in your wallet and wear your new Parkinson’s Disease ID Bracelet. These two items work together to help alert healthcare workers about your Parkinson’s diagnosis in case of an emergency situation.
  • Talk to your caregiver, Parkinson’s doctor and primary care physician about Aware in Care. Let them know about how you are preparing for your next hospital visit and how they can help.
  • Tell others about Aware in Care. If you have friends or colleagues living with Parkinson’s, please share Aware in Care with them so that we can raise awareness of these serious issues.

Need assistance? The Parkinson’s Foundation is here to help. Call us at 1-800-4PD-INFO (473-4636) or email Helpline@Parkinson.org.

I Am a Care Partner

As a care partner for a person living with Parkinson’s, you know firsthand the importance of advanced preparation in managing the disease.

Aware in Care is designed to help people with Parkinson’s and their caregivers plan for the next hospital visit, whether it is scheduled or an emergency.

The Parkinson’s Foundation recommends you take the following steps:

  • Order a free kit here or call our helpline at 1-800-4PD-INFO to learn more.
  • Read the Hospital Action Plan booklet. Take the time to understand how to use each item in the kit and how to prepare for either a planned or emergency hospital visit.
  • Help your loved one pack their Aware in Care kit. Add an emergency contact list, an extra supply of their Parkinson’s medications in their original bottles, a completed Medication Form and a copy of your loved one’s healthcare proxy card.
  • Suggest that your loved one with PD puts the Medical Alert Card in their wallet wear their new Parkinson’s Disease ID Bracelet. These two items work together to help alert healthcare workers about their Parkinson’s diagnosis in case of an emergency situation.
  • Share Aware in Care information with your loved one’s doctor and primary care physician. Talk to them about the strategies you will use to try to get better care during the next hospital visit.
  • Never leave a person with Parkinson’s alone in the hospital.  Ask family and friends to help you the next time your loved one is hospitalized so there is always someone at his or her side during the entire hospital stay. Be sure each person who is helping out understands the needs of the patient and is able to communicate those needs to healthcare staff.

Need assistance? The Parkinson’s Foundation is here to help. Call us at 1-800-4PD-INFO (473-4636) or email Helpline@Parkinson.org.

I Am a Support Group Leader

As a support group leader, you play a vital role in communicating critical information to people with Parkinson’s, their caregivers and families.

You can use Aware in Care materials to help you discuss the risks that people with Parkinson’s face in the hospital, as well as some of the strategies available to avoid these risks and get high quality care during the next hospital visit.

The Parkinson’s Foundation recommends you take the following steps:

Need assistance? The Parkinson’s Foundation is here to help. Call us at 1-800-4PD-INFO (473-4636) or email helpline@parkinson.org.

I Work in a Hospital

As a health care professional, you strive each day to provide quality care to every patient. Our Aware in Care kit can help you and your team provide quality care to people with Parkinson’s during hospitalization. This video from our NEW online course for nurses gives an overview on treating people with Parkinson’s in the hospital. You can access the full nurse course online here for free (with a cost for CEUs).

If a person with Parkinson’s arrives in your hospital with an Aware in Care kit, you should know that it was prepared and reviewed by academic experts in Parkinson’s care and the guidance in it is based on the best practices of the top academic medical centers: Parkinson’s Foundation Centers of Excellence.

If you want to get involved, here are some ways you can raise awareness about the needs of people with Parkinson’s in your hospital:

  • Make sure your patients get their anti-Parkinson’s medications on time, every time.
  • Order an Aware in Care kit. Review the kit to get familiar with the special circumstances that people with Parkinson’s face in the hospital, especially around medication timing and contraindicated medications.
  • Share Aware in Care with members of your team. You can share vital information during a staff meeting. If there is an Aware in Care Ambassador in your area, they may be able to come out to speak to your staff about the importance of the Aware in Care Initiative.
  • Include Parkinson’s and hospitalization as a topic at your next educational event. Utilize our free resources: video, discussion guide and PowerPoint presentation.

Need assistance? The Parkinson’s Foundation is here to help. Call us at 1-800-4PD-INFO (473-4636) or email helpline@parkinson.org.

I am an Educator

Estimates show the number of people living with Parkinson's disease (PD) in the US is expected to rise to 1.2 million by 2030. At the Parkinson’s Foundation, we are committed to preparing future clinicians to care for people living with Parkinson’s, caregivers and families. If you teach students who hope to become the doctors, nurses, physician assistants, physical therapists, occupational therapists, speech language pathologists, or social workers of tomorrow, we would love to arm you with the tools to teach them about the importance of the Aware in Care kit as a free resource to share with their future patients/clients.

If you want to get involved, here are some ways you can raise awareness about the needs of people with Parkinson’s with your students:

  • Order an Aware in Care kit. Review the kit to get familiar with the special circumstances that people with Parkinson’s face in the hospital, especially around medication timing and contraindicated medications.
  • Share Aware in Care with your students. We would love to see you work the Aware in Care Kit into your curriculum. If there is an Aware in Care Ambassador in your area, they may be able to come out to speak to your class about the importance of the Aware in Care Initiative. If not, we have videos available to help make it an engaging lesson for your students.
  • Attend one of our Train the Trainer programs for Faculty. The Edmond J. Safra Visiting Nurse Faculty Program and the Physical Therapy Faculty Program allow nurse and physical therapy educators to immerse themselves in learning the latest evidence-based findings in Parkinson's research and care which helps them to prepare their students to care for people living with Parkinson’s, their caregivers and families.

Need assistance? The Parkinson’s Foundation is here to help. Call us at 1-800-4PD-INFO (473-4636) or email helpline@parkinson.org.

I am a Clinician

Whether you are a doctor, nurse, physician assistant, Physical therapist, Occupational Therapist, Speech Language Pathologist, Social Worker or other clinician who works as part of the Parkinson’s Care Team, you play a vital role in communicating critical information to people with Parkinson’s and their caregivers.

We are happy to supply a demo kit for any clinician who treats people with Parkinson’s and is willing to share the kit with their patients/clients. You can use Aware in Care materials to help you discuss the risks that people with Parkinson’s face in the hospital, as well as some of the strategies available to avoid these risks and get high quality care during the next hospital visit.

The Parkinson’s Foundation recommends you take the following steps:

  • Get a sample kit. Call the Parkinson’s Foundation Helpline at 1-800-4PD-INFO (473-4636) to order a few sample kits to show your patients/clients, as well as postcards to let them know how to order their own kits.
  • Consider learning more about Parkinson’s. The Parkinson's Foundation focuses on best-practice care training, providing the latest information and increasing access to free educational tools for doctors, nurses and care team members. You can train through our Allied Team Training for Parkinson's™, our signature program that teaches medical professionals from diverse disciplines the best techniques in Parkinson's care over an intensive three-day interactive curriculum., or through our Online Courses and webinars. Learn more at Parkinson.org/ProfessionalEducation

Need assistance? The Parkinson’s Foundation is here to help. Call us at 1-800-4PD-INFO (473-4636) or email helpline@parkinson.org.

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