A 2018 survey of Aware in Care Kit users demonstrated the need for additional local support for the Aware in Care initiative.
- More than 95 percent of responses rated the kit as useful, and 97 percent said they would recommend the kit.
- Almost 60 percent had already recommended the kit to a loved one or community member.
- While 80% felt confident educating hospital staff about the needs of a person with Parkinson’s, only 50% received medications on time (up from 25% without the kit).
To address the need for additional education among people with Parkinson’s disease and those who treat them in every corner of the community, the Parkinson’s Foundation launched a new branch of the Aware in Care initiative in 2019 — the Aware in Care Ambassador Program.
Aware in Care Ambassadors are a volunteer group organized to help distribute Aware in Care kits that serve to bolster best practices in treating patients with Parkinson’s disease to both patients and healthcare providers. The dedicated volunteers, selected from a competitive pool of applications, are tasked with kicking off this new program to bring Aware in Care into more communities and hospitals around the country. Modeled after the Research Advocates program, this group includes people with Parkinson’s, current and former care partners, fitness providers and clinical professionals.
Ambassadors work directly with the Parkinson’s Foundation to share the Aware in Care kit with their local communities and create connections in local hospitals to help change the culture and policies around Parkinson’s care.
The Ambassadors Program has three primary goals: