Jackie Hunt Christensen is a Minneapolis-based health and environmental activist, author and artist and wife and mother who also happens to have Parkinson’s disease. Diagnosed in July 1998 at the age of 34, she has since been an advocate for the cause in various roles, including National Parkinson Foundation Minnesota Board volunteer, state director for Parkinson’s Action Network, and coordinator of the first National Parkinson Foundation (NPF) Young-Onset Parkinson Network (YOPN) conference. She enjoys advocating, writing and speaking about her experience living with Parkinson’s disease; environmental links to Parkinson’s; better clinician PD education in hospital settings; PD’s effects on communication and relationships; and pain.
Jackie believes that her Parkinson’s disease has brought her family closer and made her sons into the helpful, compassionate, tolerant men they are today.
With symptoms since he was seventeen years old, blogger Karl Robb (ASoftVoice.com) was diagnosed with Parkinson's disease at the age of twenty-three. Now in his forties, he is a Parkinson's advocate, an entrepreneur, an inventor, a writer, a speaker on PD issues, a photographer, and a Reiki master.
He has been featured on BBC radio, CBS News, the New York Post, Japanese television, as well as major DC television stations about PD issues. Karl, with his wife, Angela, received the 2007 Murray Charters award for outstanding advocacy. Karl and Angela run a Parkinson’s support group in Northern Virginia.