What is the Parkinson's Foundation People with Parkinson's Council?
The Parkinson's Foundation People with Parkinson's Council is comprised of people with Parkinson’s and care partners who serve as advisors to the Parkinson’s Foundation. Launched in 2006, the Council ensures that the perspective of people living with Parkinson’s is integrated into the foundation’s program development and priority setting. For more than a decade, the Council has been instrumental in advising and collaborating with the Foundation.
How Do Members Work With the Foundation?
It is critical to the Parkinson’s Foundation to engage people with Parkinson’s as partners in everything we do. Council member responsibilities may include, but are not limited to:
- Guiding our strategy to invest in promising scientific research that will end Parkinson’s disease and improve the lives of people with Parkinson’s and their families, through improved treatments, support and the best care.
- Reviewing and providing recommendations on programs, initiatives, policies and materials that are conducted to advance Parkinson’s Foundation goals.
- Providing input on unmet needs within the PD community.
- Serving as ambassadors for the foundation in the PD community and the public.
- Identifying and coordinating opportunities to share the foundation’s informational and educational resources.
- Supporting the foundation through organizing local fundraising events within the community and/or personal contributions.
- Serving on the Council and/or Parkinson’s Foundation committees and working groups.
- Attending Council conference calls and two in-person meetings per year in New York, Miami or another location.
How Long is the Term?
Members each serve a three year term on the Council.
Parkinson's Foundation People with Parkinson’s Council Members
Tom Manak (Chair)
Glen Ellyn, IL
Lisa Cone (Vice Chair)
Wheat Ridge, CO
Benjamin Bement
Baton Rouge, LA
Denise Coley
Palo Alto, CA
Lou Eisenbrandt, RN
Leawood, KS
Paula Flisnik
Marcy, NY
Phil Gee
Hilton Head, SC
Marie Head
Big Canoe, GA
Mark Kelm
Golden Valley, MN
Melvin Mitchell
Blaine, MN
Steven R. Newton, MPH
Fort Worth, TX
Tonia Smith
Cincinnati, OH
Kelly Weinschreider
Chicago, IL
Founding & Former Members
We thank the following members for their years of service.
|
Julio Angulo |
Steve DeWitte |
Andrée Jannette |
|
Caryn Balaban, MPH |
Hao Dong, PhD |
Rhona B. Johnson* |
|
Mary Bendelow, PhD |
Joy G. Dryfoos, PhD*+ |
Glenn Kasman, MS |
|
Claire Berman |
David J. Eger, PhD* |
Daniel J.B. Kiefer, JD* |
|
Elaine Casavant, RN |
Justin Fields, MBA |
Jo-Anne Lazarus, PhD* |
|
Carey Christensen* |
Carol Fox |
Nan Little, PhD |
|
Christine Colón, MS, LCGC |
Anthony Geraci, MD |
David Malarkey, DVM, PhD |
|
Diane Cook |
Eric Hellinger |
Rebecca Miller, PhD |
|
Maria De Leon, MD |
Melinda L. Hermanns, |
Linda M. Morgan, MBA, RPh |
|
Daniel DeWitt, PsyD |
Radhika Iyer, JD, MSW |
Meredith N. Mucha, MD* |
|
Girija Muralidhar, PhD |
Daniel Novak, PhD |
Michael O’Leary* |
|
Thomas A. Palizzi |
Leslie Peters |
Jay Phillips |
|
Marilyn Phillips, PT |
Paul Rohrlich, PhD |
Gretchen Rosswurm, MS |
|
Judi Sechter |
Dana Seyfried, MA |
Marc Sherman, JD |
|
Karen Smith |
Lillian Snyder*+ |
Karen St. Clair |
|
Joanna Steichen, MSW*+ |
Robert “Kelly” Sweeney |
Bruce Talbot*+ |
|
James Trussell*+ |
Ann Wasson* |
Peggy Willocks |
|
Fred Woodlief, DDS |
A.C. Woolnough |
Alan Zimmerman |
|
Joanne Genet, PA, MLS |
Alejandra Borunda |
*Denotes founding member
+Denotes deceased
