People with Parkinson’s Council

Parkinson’s Council

What is the Parkinson's Foundation People with Parkinson's Council?

The Parkinson's Foundation People with Parkinson's Council is comprised of people with Parkinson’s and care partners who serve as advisors to the Parkinson’s Foundation. Launched in 2006, the Council ensures that the perspective of people living with Parkinson’s is integrated into the foundation’s program development and priority setting. For more than a decade, the Council has been instrumental in advising and collaborating with the Foundation.

How Do Members Work With the Foundation?

It is critical to the Parkinson’s Foundation to engage people with Parkinson’s as partners in everything we do. Council member responsibilities may include, but are not limited to:

  • Guiding our strategy to invest in promising scientific research that will end Parkinson’s disease and improve the lives of people with Parkinson’s and their families, through improved treatments, support and the best care.
  • Reviewing and providing recommendations on programs, initiatives, policies and materials that are conducted to advance Parkinson’s Foundation goals.
  • Providing input on unmet needs within the PD community.
  • Serving as ambassadors for the foundation in the PD community and the public.
  • Identifying and coordinating opportunities to share the foundation’s informational and educational resources.
  • Supporting the foundation through organizing local fundraising events within the community and/or personal contributions.
  • Serving on the Council and/or Parkinson’s Foundation committees and working groups.
  • Attending Council conference calls and two in-person meetings per year in New York, Miami or another location.

How Long is the Term?

Members each serve a three year term on the Council.

Parkinson's Foundation People with Parkinson’s Council Members

Tom Manak (Chair)
Glen Ellyn, IL

Lisa Cone (Vice Chair)
Wheat Ridge, CO

Benjamin Bement
Baton Rouge, LA

Denise Coley
Palo Alto, CA

Lou Eisenbrandt, RN
Leawood, KS

Paula Flisnik
Marcy, NY

Phil Gee
Hilton Head, SC

Marie Head
Big Canoe, GA

Mark Kelm
Golden Valley, MN

Melvin Mitchell
Blaine, MN

Steven R. Newton, MPH
Fort Worth, TX

Tonia Smith
Cincinnati, OH

Kelly Weinschreider
Chicago, IL

Founding & Former Members

We thank the following members for their years of service.

Julio Angulo 
Portland, OR

Steve DeWitte
Washington, CT

Andrée Jannette
West Chester, PA

Caryn Balaban, MPH
Phoenix, AZ

Hao Dong, PhD
Tallahassee, FL

Rhona B. Johnson*
Greenwich, CT

Mary Bendelow, PhD
Conifer, CO

Joy G. Dryfoos, PhD*+
Boston, MA

Glenn Kasman, MS
Mercer Island, WA 

Claire Berman
New York, NY

David J. Eger, PhD*
White Plains, NY

Daniel J.B. Kiefer, JD*
Los Angeles, CA

Elaine Casavant, RN
Lansing, MI

Justin Fields, MBA
Knoxville, TN

Jo-Anne Lazarus, PhD*
Madison, WI

Carey Christensen*
Stanwood, WA

Carol Fox
Sarasota, FL

Nan Little, PhD
Seattle, WA

Christine Colón, MS, LCGC
Pleasantville, NY

Anthony Geraci, MD
Canandaigua, NY

David Malarkey, DVM, PhD
Cary, NC

Diane Cook
Denver, CO

Eric Hellinger
Cedar Park, TX

Rebecca Miller, PhD
New Haven, CT

Maria De Leon, MD
Nacogdoches, TX

Melinda L. Hermanns,
MSN, RN, BC*
Tyler, TX

Linda M. Morgan, MBA, RPh
Asheville, NC

Daniel DeWitt, PsyD
Grand Rapids, MI

Radhika Iyer, JD, MSW
Durham, NC

Meredith N. Mucha, MD*
Westerville, OH

Girija Muralidhar, PhD
Poway, CA

Daniel Novak, PhD
Westworth Village, TX

Michael O’Leary*
Anthem, AZ

Thomas A. Palizzi
Denver, CO

Leslie Peters
Colorado Springs, CO

Jay Phillips
Summerville, SC

Marilyn Phillips, PT
Summerville, SC

Paul Rohrlich, PhD
Falls Church, VA

Gretchen Rosswurm, MS
Irving, TX

Judi Sechter
Merrick, NY

Dana Seyfried, MA
Roslyn, NY

Marc Sherman, JD
Forest Hills, NY

Karen Smith
Evansville, IN

Lillian Snyder*+
Wheaton, IL

Karen St. Clair
Sante Fe, NM

Joanna Steichen, MSW*+
New York, NY

Robert “Kelly” Sweeney
Portland, OR

Bruce Talbot*+
Moretown, VT

James Trussell*+
Rome, GA

Ann Wasson*
San Francisco, CA

Peggy Willocks
Johnson City, TN

Fred Woodlief, DDS
Richmond, VA

A.C. Woolnough
Sandpoint, ID

Alan Zimmerman
Knoxville, TN 

Joanne Genet, PA, MLS
Lafayette, CA

Alejandra Borunda
Phoenix, AZ

 

*Denotes founding member

+Denotes deceased

X
 

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