The only people who genuinely understand the complexity of being a caregiver to someone with Parkinson’s disease (PD) are people who are or have been caregivers themselves. That’s why we partnered with Honor to gather helpful tips from the people who know best: experienced caregivers. After hearing from 120 Parkinson’s caregivers, we compiled the top seven tips every Parkinson’s caregiver should know in order to prepare for the journey ahead:
Learning to take the best care of yourself is caregiver job #1. When you’re a Parkinson’s disease (PD) caregiver, life seems like an endless list of things to do with never enough time to do them. Every day can feel like it goes by in 10 minutes — and lasts two weeks.
Learning how to take care of yourself early in your journey as a Parkinson’s disease (PD) caregiver is more important than you might think. If you’re feeling exhausted, overwhelmed, too stressed to think clearly, then you can’t be at your best, as a person or caregiver.
This quick starter guide for families and caregivers is from Honor. Every person with Parkinson’s disease (PD) is unique — and so is every caregiver. With the right preparation, planning and support, you can do this!
My big sister, Janet Reno, died on November 7, 2016. She lived with Parkinson's disease for 21 ½ years. I have walked that road by her side, but we have not walked that road alone.
It takes a village.
Everyone’s Parkinson's journey is different. Since it is age related, most people die of something else. There is no point dwelling on the last chapter if you are not going to get there.
In all our programs, NPF aims to make life better for people affected by Parkinson’s disease (PD). Parkinson's not only affects the person who receives the diagnosis — it extends to that person’s family, friends and community. While we pride ourselves on the high quality information and resources we provide for people with Parkinson’s, we also recognize that caregivers need support.
November is National Family Caregivers Month. The lively discussion and continued interest from our Caregiver Summit earlier this year showed us that simply put, caregivers need more help. We have gone through our many caregiver-focused articles, webpages, Facebook and forum posts to find some of the best pieces of advice for caregivers:
As a caregiver, what areas of your life can you improve? Take this quiz to narrow it down. Monitor how your risk factors change over time by taking this quiz every few months. Share your results with family and friends so they can better understand the scope of caregiving.
It is difficult to provide broad, yet helpful occupational therapy tips for Parkinson’s disease (PD). As the saying goes, “When you have met one person with Parkinson’s disease, you have met one person with Parkinson’s disease.” The best tip I can give you as an occupational therapist is to find and regularly see an occupational therapist in your area who specializes in skilled therapy treatment for people with Parkinson’s.
My 35-year-old husband has Young Onset Parkinson’s Disease (YOPD). It sucks. I’m often asked, “How’s Todd?” or “How’s your husband’s health?” or “Is Todd staying healthy?” Thank you for asking about my husband. I’m happy to say he’s doing pretty darn good, considering he has a progressive neurological disease and we don’t know what the future holds. No, he does not have dementia, a question I was asked last week. Yes, we are planning to stay in our two-story house for a while.