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Parkinson’s Outcomes Project

The Parkinson’s Foundation invests millions of dollars into research to help improve the lives of people with Parkinson’s disease (PD). Our most exciting study is underway now: the Parkinson’s Outcomes Project.

Started in 2009, the Parkinson’s Outcomes Project is the largest-ever clinical study of Parkinson’s disease with over 12,000 participants in five countries. Through this groundbreaking initiative, Parkinson’s Foundation’s Centers of Excellence track and monitor their care of people with Parkinson’s over time.

What makes this project truly innovative is that it studies everyone with Parkinson’s, from the newly-diagnosed to people who have lived with Parkinson’s for 20 years or more, providing us with a comprehensive view of the disease and its overall impact on people’s lives.

Our unique study evaluates a wide range of Parkinson’s factors including:

  • Most effective Parkinson’s treatments
  • Therapy benefits
  • Best candidates for each treatment
  • Various exercise program benefits
  • Caregiver impacts

Research has shown that the better we manage Parkinson’s today, the better life will be tomorrow. In addition to finding better treatments for people with Parkinson’s and sharing models of excellent care with health professionals, we are working to ensure that every person with Parkinson’s receives the best possible care, no matter where receive care.  

Parkinson’s Outcomes Project research highlights:

  • Regular neurologist care can save the lives of thousands of people each year.
  • People with Parkinson’s who receive different medicines and treatment plans, depending on where they receive care, show vastly different results.
  • Increasing physical activity to at least 2.5 hours a week can slow decline in quality of life.
  • Interventions providing neuroprotective benefits, such as exercise, that could change the course of the disease.
  • Depression A mood disorder whose symptoms can include a persistent sad or empty mood, feelings of hopelessness or pessimism, irritability and loss of interest or pleasure in previously enjoyable activities. and anxiety A feeling of nervousness, worried thoughts and physical distress. are the number one factors impacting the overall health of people with Parkinson’s.
  • Caregiving plays an important role in the care people with Parkinson receive. Understanding how to best provide day-to-day care will help improve the quality of life for those with Parkinson’s.

The Parkinson’s Foundation focuses on what people with Parkinson’s need today. Your investment and support allow us to help people live their best lives now until there is a tomorrow without Parkinson’s.

Find out if we are enrolling patients in this study at a center near you by visiting this page.

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