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Programs & Support

Support Groups

Open PD Support Groups – Monroe County

The following groups are open to anyone diagnosed with Parkinson’s, spouse/partner, care partner, support people.

Location: Westside YMCA, 920 Elmgrove Road, Gates, 14624
Meets: Second Tuesday of each month
Time: 1:00pm – 2:30pm

For more information about this group contact Tracy Lafountain, Lifespan staff at the Westside YMCA, 585-341-3075 or Dick Stewart at 585-247-4868.

Location: United Methodist Church of Webster, 169 E. Main St. Webster, 14580
Meets: Second Wednesday of each month
Time: 1:00pm – 2:30pm

For more information about this group contact Jo Zimmerman at 585-872-2738 or the PFGR office.

Recently Diagnosed

This short-term group series is by invitation for individuals diagnosed five years or less and their spouse/partner.  Location, dates, time are scheduled several times per year. For more information, contact Nancy Nealon at the Parkinson’s Foundation Greater Rochester office.

Young Onset

This support group is comprised of individuals diagnosed with PD in their 30's, 40's and 50's.  Care partners are welcome.  Meetings are a blend of guest speakers, questions & answer sessions and informal sharing.

Location:  Irondequoit Public Library, Newport Room, 1290 Titus Avenue, Rochester, 14617.
Meets: First Monday of the month, September through June
Time: 6:00pm – 7:30pm

For more information about this support group contact Yvonne Hylton @ 585-683-0043.

Caregivers/Care partners(only)

Caregiver’s and care partners are invited to participate in this support group. 

Location: Al Sigl Center, 1000 Elmwood Ave, Rochester, 14620, Door #1
Meets: Second Saturday of each month
Time: 11:30am – 1:00pm

For more information about this support group contact Nancy Nealon at the Parkinson’s Foundation Greater Rochester office.

Women & PD Forum

Any woman diagnosed with PD is invited to join this monthly conversation.

Location: Al Sigl Center, 1000 Elmwood Ave, Rochester, 14620, Door #1
Meets: Fourth Monday of each month
Time: 10:30am – 12:00pm

For more information about this forum contact Nancy Nealon at the Parkinson’s Foundation Greater Rochester office.

Parkinson Café - The Highlands at Pittsford

The Parkinson Café is a gathering intended to provide a social outlet, intellectual and cultural opportunities for persons with PD and partners or other support people.  A different topic/speaker is featured each month.  You are invited to bring your own lunch or take advantage of the catered lunch for a donation of $2 per person.

Location:  The Highlands at Pittsford, The Hannemann Club, Pittsford
Meets: Third Thursday of the month, October, November, January through May
Time: 10:00am – 1:00pm

For more information about this program contact Barbera Heyn at 585-381-7099 or the PFGR office.

Respite Grants

Parkinson's Foundation Greater Rochester is pleased to be able to provide modest financial support to the Parkinson’s community by offering grants to cover the expense of in-home or facility-based respite.  Grants of up to $500 are available to help defray costs of respite care in support of live-in caregivers. The grant monies can be used to pay for a few hours several times or for several days. Applications are available on the PFGR website or by calling the local office.  Due to the limited financial resources of the chapter, anyone with existing respite service insurance coverage is not eligible.

Respite Care Program Information | Respite Care Program Application | Respite Care Diagnosis Statement

Education Events

Life Hacks for PD: Falls Prevention Education Program - Saturday, December 16th

This program will focus on fall prevention and fall recovery. Come and learn about the steps you can take to help reduce your risk of injury. For more information and to register call 585-234-5355.

Monthly Education Program

PFGR sponsors a variety of informative PD education programs August – May of each year.  This program is open to anyone interested in learning more about living with Parkinson’s.  These 2-hour sessions are typically held on a Saturday morning.  Call the PFGR office.

Powerful Tools for Caregivers

This is a six-week course designed specifically for caregivers/care partners of individuals living with a chronic illness.  Powerful Tools is a national, evidence-based curriculum proven to increase the skills and tools needed by caregivers.  The sessions are focused totally on the caregiver/caregiving process.  This is not a support group, but education program.  PFGR typically offers this program in the spring and fall.  Call the PFGR for more information.

Annual Parkinson Symposium

The hallmark of each year is this annual tradition that brings hundreds of people together to learn from national and local experts.  The symposium is an opportunity to join with the Parkinson’s community for the latest information, movement breaks and information from a variety of vendors.  The symposium is typically held in April, Parkinson’s Awareness Month.  Visit the website or call the office for more information.

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