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My PD Story

We hope you find these PD stories inspiring and helpful as you navigate your own path living with this disease.

Read the below stories for inspiration and hope. You can also share with us how your life has been affected by Parkinson's (as someone with the disease, a caregiver or family member). Tell us what challenges you have overcome and what keeps you happy, healthy and hopeful. What can you share with others that will help them keep moving forward? Feel free to include a quotation that you find inspiring.

Bill

I believe that running on all kinds of trails, rocks, dirt, roots and mud forces my mind to develop new pathways...

Mariëtte

"The great thing about getting a nasty disease is that you start to appreciate the little things in life..."

Kellyn

Moving Day® shows us that we are not alone and reminds us that Parkinson's will not defeat us.

Aron

“I get locked in a straitjacket and lit on fire upside down, balance can’t be my issue,” Aron told his doctor.

Mary Ann

Caring for people who see or believe things that are not real can be emotionally draining.

Nalini

It began with a tremor in my left hand — my only symptom at the time.

Kevin

Tremble Clefs helped Dad strengthen his vocal muscles- his memory lives on through my voice.

Wendy

Spoiler: This story has a positive ending!...

Carey

I made the mistake of Googling Parkinson’s. The millions of results all seemed so negative...

Brad

Brad can’t slow down. He works full time managing more than 600 clients and millions...

Terri

"I am concerned about you,” she said, “You remind me of me." I immediately knew...

Larry

I realized that my attitude was the key factor in accepting I had PD and that I had to meet what challenges lie ahead.

Ray

Does having Parkinson’s disease (PD) embarrass you? It did me! It all started in June 2008...

Jody

My mom’s initial symptoms were common for people with Parkinson’s: rigidity and slowness of movement.

Allyson

I am back in the river this summer, three and a half years past my diagnosis of tremor dominant Parkinson’s.

Cristina

My father’s Parkinson’s disease (PD) symptoms first manifested as fatigue. He would get exhausted just from walking...

Frances

As a pyrotechnician I get cut, I fix it, I cut it open again, I get stitches. It’s done. Sorry is not a solution.

Rae

At 15, I fell in love with Beethoven’s Seventh Symphony when I first played...

Jeff

I can say with confidence that, without DBS, I would not be walking today.

Sharon

My big question was, "What am I going to do with all that time on my hands?" The answer: doodles.

Vera

Research shows that many people with PD have an explosion of creativity...

John

In those 33 years I have run numerous 5Ks, 10Ks, half-marathons and, at 51, my first marathon.

Makenzie

My father, Dudley, kept me accountable for my training as I did for his.

Christian

When the struggle is all you know, fighting becomes natural and quitting becomes impossible.

Jerry

Why not start taking control today? You’ll begin to feel better faster than you think...

Hiih

This movement disorder was overpowering the left side of my body. I had trouble...

Mike

I'm not a fool. I have experienced the dark depression of a major disability...

Stephanie

I had my first telemedicine appointment with my movement disorder specialist today....

Shirley

Shirley Bealor drives 120 miles roundtrip to see her movement disorder specialist...

Stephanie

I have a double whammy when it comes to my most prominent symptoms....

Megan

Shortly before I left for college, my grandma and I had a long conversation about...

Melanie & Stephen

When one doctor told them something couldn't be done, they went to another.

Mary

Five years ago I was told I had Parkinson's disease I'd be in a wheelchair within five years.

Colin

Through the lens of a son living 3,000 miles away I saw the disease take over in stages.

Birgitta

When Kristina Durham visited her mother, Birgitta Vagenius, she couldn’t believe what she saw...

Suzanne

Don’t stop life because of Parkinson’s...I’m still working on my bucket list!

Frankie

When you go to the doctor you get good news or bad news. For my dad it was bad.

Brian

"They say God gives his toughest battles to his strongest warriors and I knew Tim was a warrior."

Natalie

I am a fighter! I thought I would never say those words because I am a lover not a fighter, but I had to change.

James

When I was in school I was a body builder and a health nut. I took martial arts...

Jennifer

Fifteen years ago, right after I graduated from college, my father was diagnosed with Parkinson’s disease.

Jennifer

I was scared when a movement specialist told me I had PD... How would I take care of my family?

Alex

I was shocked to see his transformation due to Parkinson's disease...I wanted to do something for him.

Kevin

Kevin devised a way to skydive using one arm, setting set a new record for one-armed skydives.

Alan

I have PD and I have a friend in recently diagnosed... I wrote him the following poem.

Diane

Jay’s PD progressed unexpectedl-, seeing black cats all over the house that were not really there.

Ric

I wanted to scream. Inside I was saying what am I going to do, how will I survive, how will I end up?

Allison

I wish to break boundaries. I want people with PD to realize this disease can be controlled to a major extent by exercise.

Tom

Having Parkinson's saved my life. I realize some people may be thinking "are you crazy?"

Brenda

"I don't sit in pain. I paint through it or walk through it. I fight and challenge it every minute of every day."

Jean

Jean wrote a series of 16 poems documenting her experience with the disease.

Marlena

I'm stubborn and realized that if something or someone was going to help my husband it would have to be me.

Robert

I spent 26 years trying to stay...out of the public view. Now I am speaking up.

Scott

“It’s just that you don’t realize how strong the depression is going to hit,” Scott said...

Francis

I was born in 1955 and now live in Liège, Belgium. In short, I have lived a full life, with a permanent...

Kenneth

(We) participated at Moving Day® Boston-for the first time since I can remember, I saw my dad smile...

Philip

This story is about my dad, Philip. He was the most beautiful human being I have ever known..

Daryl

My journey with Parkinson's disease (PD) started when I was a young combat Marine...

Todd

In honor of my cute husband, I am participating in Moving Day® Chicago walk to...

Geraldine

My PD story is of my wonderful mother, Geraldine Hayes, who sadly passed on...

Emilia

My mom was diagnosed with Parkinson's disease in 2004. At first, none of my family...

Supereena

The best way I can give back is to educate people about this disease. If people knew...

Theresa

Theresa Snoeyenbos, 50, was diagnosed with Parkinson's disease when she was 32...

Pat

Three days a week, Pat Murney dons a pair of yoga pants and a t-shirt and heads to a movement...

Rosie

"There are moments which mark your life...when you realize nothing will ever be the same and time is...

Larry

Vigorous exercise has most definitely improved my gait and given me an overall feeling of taking back...

Beth

The Grand Canyon gave me a reason to get up and get going every day, and not give in to apathy...

Marty

It was as though I was helpless, powerless to stop the disease that was affecting someone...

Angie

After her husband Dan was diagnosed with Young-Onset Parkinson's disease six years ago, at the...

Kay

Now I can cut my own food, dress myself and dance with my husband. I have a future to look forward...

Althea

Moving Day® is a vehicle to make a huge impact. It focuses on what people can do, celebrates...

Karen

When Karen Anderson's husband, Roger, went into the hospital to undergo surgery for a herniated...

Betty

For decades, Betty and Rick did more than just "deal" with Parkinson's; they carved out a full life...

Wendell

I want to tell everyone that it is possible to fight this disease, smile at yourself and hold off the inevitable...

Allison

By being active and raising awareness, we can offer more resources and learn more about the disease...

Michele

I noticed a slight, persistent tremor in my right hand. Being a medical professional I...

Dan

It was 15 years ago when our family doctor told us that my wife Jeanne was showing signs and...

Todd

I felt like someone had reached into my chest and squeezed all the air out of my lungs...

Ken

I have a brother-in-law who never wants to go back either, but he has his reasons, he fought in...

Frankie

My first thought is my grandfather Frank who I am named after, he was diagnosed...

Penny

My mother was my hero in so many ways! She accepted and dealt with Parkinson's disease...

Hero

I bounced back after discovering a secret recipe for fighting Parkinson's, which consisted of...

Sam

I was 66 when I was diagnosed with Parkinson's disease. However, looking back I had...

Cherie

It's been nearly two years, but it feels like yesterday when the doctor told me I have Parkinson's...

Bonnie

Insecurity, reluctance and a need for education felt like a whirlwind of uncertainty at the beginning of...

Kelly

I am here to tell you, it's ok, you don't need to surrender to this sly disease that sneaks up...

Eleanor

My limits are my own. Even with my "resident taskmaster", PD, I have some say in how...

Randy

It was after noticing a slight tremor in my left hand that I decided to go to the doctor. This doctor was a...

John

Muhammad Ali, Pope John Paul II, John Baumann, Michael J. Fox. Wait a second- what do...

Lizbeth

My father was diagnosed with Parkinson's close to his 80th birthday. It was a shock to my family...

Linda

Dear Parkinson's Disease: Please be kind to my family and me. We did not really extend an invitation...

Greg

I was asked to tell the story of how I overcame adversity. You see, I was diagnosed with...

Monica

It's very much like people who stutter and can't talk fluidly, but they can sing. How can that be?...

Allison

I ran 40 miles on my 40th birthday to raise money and awareness for Parkinson's...

David

I was 46 years old when diagnosed with PD in 1996 and have since been tenuously hanging...

Javier

When I first found out that I had Young Onset Parkinson's I didn't have the words to...

Jane

It was a tough time in our lives three years ago. Gary was beginning to consider getting...

Marilyn

Since 2002, I struggled with Three 'D's. DIAGNOSIS, DENIAL and DEPRESSION. It took...

Leo

Leo Narcisse Robichaud was born in St. Charles, New Brunswick. For twenty-two years he...

Kathi

One recent morning, I woke up shaking. More like vibrating, actually. The sensation reminded me...

Rich

It was just past midnight on March 14, 1996. I began the day strapped into the crew compartment of...

Robert

It was Christmas morning, 2004. I had just spent the loneliest night of my life on what had always...

Paul

I kicked my legs and thrashed my arms during vivid dreams of physical activity, and my dear...

Phil

I was first diagnosed with Parkinson's in 2006 at the age of 44. At the time, I had several...

Kate

My name is Kate Ward and I was diagnosed with Parkinson's in September 1999. I've had...

Margaret

I was diagnosed with Parkinson's disease at age 69. My life prior had been very full, challenging...

Anne

I have known Kristina Wedding-Taylor, a fellow high school teacher, since she was fourteen...

Jackie

As my oldest son Alex's high school graduation day nears, I am stressing out over a day which...