Three out of four people with Parkinson's disease (PD) do not get their medications on time when hospitalized, according to a Parkinson's Foundation research study. As a result, 61 percent of those patients develop serious complications. In 2011, the Struthers Parkinson's Center, a Parkinson's Foundation Center of Excellence, decided to change these statistics.
National Parkinson Foundation's blog
Over the past two decades, deep brain stimulation (DBS) therapy for patients with Parkinson’s disease (PD) has been extremely successful. It has been estimated that DBS has meaningfully helped tens of thousands of patients worldwide, improving tremor, dyskinesia, on-off fluctuations and several other Parkinson’s symptoms. DBS has however, fallen short in addressing disease progression issues including walking, talking and thinking.
Something resonated with me on my recent visit to the Beth Israel Deaconess Medical Center, a Parkinson’s Foundation Center of Excellence. As I listened to the Parkinson’s patients and caregivers panel, I was impressed to learn that everyone unanimously agreed on the vital importance of team care. From the movement disorder specialist to the nurse, everyone kept referring to “our” care plan. It was working.
Learning how to take care of yourself early in your journey as a Parkinson’s disease (PD) caregiver is more important than you might think. If you’re feeling exhausted, overwhelmed, too stressed to think clearly, then you can’t be at your best, as a person or caregiver.
There has long been a fascination about the relationship between welding, mining and Parkinson-like symptoms. In this month’s What’s Hot blog and in my NEJM Journal Watch blog I explore this murky history and relationship. Doctors and health care professionals long ago identified a Parkinson-like syndrome that developed in welders and manganese miners. Manganese, the chemical, has been linked to Parkinson-like symptoms (also referred to as parkinsonism).
This blog is the third in a series detailing the roles of each member of a comprehensive care team.
Winter often brings unexpected weather and for many, the shorter days can lead to vitamin D deficiency, increasing chances of developing seasonal depression. The good news is that the Parkinson's Foundation Ohio Chapter has gathered these tips to help people with Parkinson’s disease (PD) and their caregivers ensure that PD-related needs are accounted for this winter.
This quick starter guide for families and caregivers is from Honor. Every person with Parkinson’s disease (PD) is unique — and so is every caregiver. With the right preparation, planning and support, you can do this!
Considerable evidence has been mounting in support of a relationship between the gastrointestinal (GI) system and Parkinson’s disease (PD). Many pathologists and neurologists even believe that Parkinson’s may start in the gut, but this view remains speculative. Many GI symptoms, such as constipation, occur as prominent and disabling PD symptoms. In the July 2013 What’s Hot in PD? column, I addressed H.
My big sister, Janet Reno, died on November 7, 2016. She lived with Parkinson's disease for 21 ½ years. I have walked that road by her side, but we have not walked that road alone.
It takes a village.
Everyone’s Parkinson's journey is different. Since it is age related, most people die of something else. There is no point dwelling on the last chapter if you are not going to get there.