The truth is I don’t see myself as a caregiver to my husband, Todd. A not-so-perfect wife? A decent cook? A drinking and binge television watching partner? Yes. A caregiver? Hmm. Caregiver seems like a title reserved for couples who have been married for decades, or at least longer than 14 months.
Blog Introduction Text
Welcome to the National Parkinson Foundation's blog, where you can keep up-to-date on the latest research, read about what's hot in the Parkinson's community, learn caregiving tips and more.
Parkinson’s patients, families and clinicians have been frustrated with the lack of successful new treatments for Parkinson’s disease. Over the last 15 years, clinical trials of new drugs have largely failed to result in options that have led to improvement in the quality of life of those living with Parkinson’s disease.
As research and trials continue to bring hope for a day when there is a cure for Parkinson’s disease (PD), there are millions of people that live each day feeling isolated for one reason or another. As we are treating the disease, we must not forget the people that have the disease or the millions of unpaid caregivers who care for them.
The recent media blitz about a leukemia drug named Nilotinib as a potential treatment for Parkinson’s disease resulted in thousands of patients and family members phoning their doctors and our 1-800-4PD-INFO Helpline requesting access to this drug. The National Parkinson Foundation quickly responded with a public statement recommending that patients not pursue this therapy unless under a clinical trial.
Ifeanyi Enoch Onuoha said, “every challenge you encounter in life is a fork in the road. You have the choice to choose which way to go: backward, forward, breakdown or breakthrough.” Since the publication of Parkinson’s Treatment 10 Secrets to a Happier Life with Parkinson’s Disease, the most common question we have received from patients is what are and what will be the next breakthrough therapies for Parkinson’s disease.
Recently, the exciting potential has emerged that we could identify and use already FDA approved drugs to modify disease progression and to treat Parkinson’s disease. Drugs used for diabetes and anti-malaria treatment have been suggested as disease modifiers in Parkinson’s and perhaps even candidates to improve disease related symptoms.
This is the last of a three-part series of tips for Parkinson’s Caregivers from Ageless Grace® (read Part 1 and Part 2). Eating to feed and nourish the Body and Brain is especially important for PD. Even though obesity itself is not a cause of Parkinson’s disease, it can be a limiting factor in how much movement is possible as the disease progresses.
The recent surge in publications on exercise for Parkinson’s disease has left many patients and doctors ill equipped to implement programs. Most of the exercise trials in Parkinson’s have revealed meaningful benefits both in Parkinson’s specific symptoms and in quality of life.
Parkinson’s disease patients frequently struggle to identify drug therapies that can address bothersome symptoms such as sleep dysfunction, bladder urgency, drooling, and tremor. Many of the drug therapies such as Benadryl (diphenhydramine), Advil PM, Alleve PM, common antihistamines, and others pills are readily available over the counter and do not require a prescription. These medications block a cholinergic receptor in the brain, and can improve many Parkinson’s disease symptoms.