This is the first part of a series of videos discussing sex differences in Parkinson's disease. The video was created from a presentation given by Dr. Nabila Dahodwala from the University of Pennsylvania. The National Parkinson Foundation recently announced that it awarded Dr. Dahodwala a two-year grant to study issues that result in differences in caregiving and to explore whether there may be options to improve caregiving. Dr.
Blog Introduction Text
Welcome to the National Parkinson Foundation's blog, where you can keep up-to-date on the latest research, read about what's hot in the Parkinson's community, learn caregiving tips and more.
Communication is a vital way we connect, build and maintain relationships. It is scary when your loved one begins to have communication issues due to Parkinson’s disease (PD) that may threaten your bond. The good thing is it doesn’t have to be that way.
Reviewing some cognitive and communication changes that someone with PD may experience as the disease progresses, your loved one might:
Recently we sought to identify risk factors for hospitalization (emergency room visits or admissions) among Parkinson’s disease patients followed in our National Parkinson Foundation Parkinson’s Outcomes Project. The initiative was modeled after a similar effort put together by Gerry O’Connor at the Dartmouth Health Outcomes Center. O’Connor had a crazy but practical idea.
The truth is I don’t see myself as a caregiver to my husband, Todd. A not-so-perfect wife? A decent cook? A drinking and binge television watching partner? Yes. A caregiver? Hmm. Caregiver seems like a title reserved for couples who have been married for decades, or at least longer than 14 months.
Parkinson’s patients, families and clinicians have been frustrated with the lack of successful new treatments for Parkinson’s disease. Over the last 15 years, clinical trials of new drugs have largely failed to result in options that have led to improvement in the quality of life of those living with Parkinson’s disease.
As research and trials continue to bring hope for a day when there is a cure for Parkinson’s disease (PD), there are millions of people that live each day feeling isolated for one reason or another. As we are treating the disease, we must not forget the people that have the disease or the millions of unpaid caregivers who care for them.
The recent media blitz about a leukemia drug named Nilotinib as a potential treatment for Parkinson’s disease resulted in thousands of patients and family members phoning their doctors and our 1-800-4PD-INFO Helpline requesting access to this drug. The National Parkinson Foundation quickly responded with a public statement recommending that patients not pursue this therapy unless under a clinical trial.
Ifeanyi Enoch Onuoha said, “every challenge you encounter in life is a fork in the road. You have the choice to choose which way to go: backward, forward, breakdown or breakthrough.” Since the publication of Parkinson’s Treatment 10 Secrets to a Happier Life with Parkinson’s Disease, the most common question we have received from patients is what are and what will be the next breakthrough therapies for Parkinson’s disease.
Recently, the exciting potential has emerged that we could identify and use already FDA approved drugs to modify disease progression and to treat Parkinson’s disease. Drugs used for diabetes and anti-malaria treatment have been suggested as disease modifiers in Parkinson’s and perhaps even candidates to improve disease related symptoms.