With the recent news of Tim Tebow's father being diagnosed with Parkinson's disease (PD), the National Parkinson Foundation (NPF) asked our Facebook followers if they had any advice for Tim or his father, Bob. To our surprise, in less than three hours we received more than 300 insightful comments with first-hand advice to the Tebow family, that can be applied to all families and people who have received a recent PD diagnosis.
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Welcome to the National Parkinson Foundation's blog, where you can keep up-to-date on the latest research, read about what's hot in the Parkinson's community, learn caregiving tips and more.
November is National Family Caregivers Month. The lively discussion and continued interest from our Caregiver Summit earlier this year showed us that simply put, caregivers need more help. We have gone through our many caregiver-focused articles, webpages, Facebook and forum posts to find some of the best pieces of advice for caregivers:
As a caregiver, what areas of your life can you improve? Take this quiz to narrow it down. Monitor how your risk factors change over time by taking this quiz every few months. Share your results with family and friends so they can better understand the scope of caregiving.
Because the 4th World Parkinson Congress (WPC) was held stateside, in Portland, OR, the National Parkinson Foundation (NPF) sent multiple staff members from headquarters and our Centers of Excellence. For the people living with Parkinson’s disease (PD), their caregivers, non-profits and pharmaceutical companies in attendance, WPC was an eye-opening experience.
Preparing for extreme weather is a burden for anyone in a storm’s path. People with Parkinson’s disease (PD) and their caregivers should take these tips into consideration to ensure that all PD-related needs are accounted for when preparing for hurricanes and other natural disasters:
Ted Dawson, PhD, and colleagues at the Johns Hopkins University, a National Parkinson Foundation Center of Excellence, have uncovered a potential new approach to treat Parkinson’s disease (PD). Researchers in Dawson’s laboratory focused on a protein called lymphocyte-activation gene 3, known as LAG3. This protein has been shown to be important in cell to cell transfers of α-synuclein (Lewy bodies), which is a protein found in the brain of a person with PD.
While reviewing data from the National Parkinson Foundation’s (NPF) Parkinson’s Outcomes Project a year ago, I noticed a participant whose quality of life went from pretty good to terrible, then back to pretty good. I wondered, “what happened here?” The answer: psychosis.
A recent press release from the National Institutes of Neurological Disorders and Stroke detailed exciting ongoing work aimed to uncover magnetic resonance imaging (MRI) techniques capable of tracking Parkinson’s disease (PD) progression. In this month’s What’s Hot in PD? column we will review the recent progress of MRI-based biomarkers for Parkinson’s diagnosis and progression, and discuss the importance of the findings, especially in the context of clinical trials.
Previous What’s Hot blogs have addressed the promise and challenge of developing biomarkers for Parkinson’s disease (PD). Several groups of researchers have been working on blood and imaging biomarkers to provide more information on Parkinson’s: diagnosis, prediction, monitoring and methods to measure progression. In this month’s What’s Hot blog, we examine a new approach that utilizes a urine sample to detect the presence of Parkinson’s disease activity.
It is difficult to provide broad, yet helpful occupational therapy tips for Parkinson’s disease (PD). As the saying goes, “When you have met one person with Parkinson’s disease, you have met one person with Parkinson’s disease.” The best tip I can give you as an occupational therapist is to find and regularly see an occupational therapist in your area who specializes in skilled therapy treatment for people with Parkinson’s.