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Welcome to the National Parkinson Foundation's blog, where you can keep up-to-date on the latest research, read about what's hot in the Parkinson's community, learn caregiving tips and more.
Earlier this month, members of the Parkinson’s Foundation team joined thousands of movement disorder specialists in Vancouver, Canada.
They were on site for the International Congress of Parkinson’s Disease and Movement Disorders, which brings together neurologists with expertise in Parkinson’s and similar diseases to share the latest in advancements in research and care.
“The experience of living with Parkinson’s disease (PD) is unique to each individual. We really strive to listen to our patients, caregivers, families, providers and the community in creating an all-encompassing supportive services program that helps people to adapt and live well with Parkinson’s across the continuum and at all stages of the disease,” said Amy Lemen, MA, LCSW.
The only people who genuinely understand the complexity of being a caregiver to someone with Parkinson’s disease (PD) are people who are or have been caregivers themselves. That’s why we partnered with Honor to gather helpful tips from the people who know best: experienced caregivers. After hearing from 120 Parkinson’s caregivers, we compiled the top seven tips every Parkinson’s caregiver should know in order to prepare for the journey ahead:
Does summer have you thinking about traveling somewhere new or enjoying the great outdoors? Follow these tips on Parkinson’s disease (PD) and travel, sun safety and heat exhaustion:
Vacations are a big part of living well. Many people choose to travel during summer, but with Parkinson’s there are some extra things to consider before hitting the road. These tips can help you stay safe while you travel:
Nutrition plays a very important role in the management of Parkinson’s disease (PD). People with PD may experience constipation, food-medication interactions, difficulty swallowing and weight loss. Establishing and maintaining good eating habits can help manage these issues and improve overall well-being while navigating Parkinson’s.
Deep brain stimulation (DBS) is a therapy that has been administered to over 100,000 patients worldwide. The majority of people receiving deep brain stimulation live with a diagnosis of Parkinson’s disease (PD). The technique has been helpful for improving tremor, on-off fluctuations, dyskinesia, and off time. One of the main limitations of deep brain stimulation has been that it requires brain surgery and carries an associated risk of hemorrhage, stroke, infection, and hardware failure.
Living with Parkinson’s can be stressful, triggering a cascade of worries. Anxiety is common among people with Parkinson’s and can take many forms: general anxiety, panic attacks, social phobia or attacks brought on by isolated instances, to name a few.
There are approximately 3,000 movement disorder specialists in the world. While they are all neurologists, not all of them have experience treating Parkinson’s disease (PD). For every person with Parkinson’s to receive treatment from a specialist, each one of these doctors would have to treat more than 3,000 people with PD. Parkinson’s Foundation estimates that the average movement disorder specialist sees a total of 350 patients. That’s more than 8.9 million people with PD who are not being treated by a specialist.
Should we consider subcutaneous apomorphine infusions for Parkinson’s disease patients who do not want deep brain stimulation or a dopamine pump? There is a growing interest among people with Parkinson’s disease (PD) and families for a “nonsurgical” alternative to deep brain stimulation (DBS) surgery or to Duopa pump therapy. The idea of brain surgery or a feeding tube have been cited as being undesirable for large numbers of PD patients.
Parkinson’s disease (PD) has seen an elevation in recognition over the last few decades. Through the help of media, celebrities and events that promote PD awareness, Parkinson’s is far from an unknown disease. While we still have a long way to go to educate and make everyone aware of Parkinson’s and its impact, the history of this disease goes back to 1,000 B.C.