Each year, scientists take us a little closer to understanding the genetics of Parkinson’s disease (PD). Perhaps the most interesting and perplexing finding so far has been that only 10 to 15 percent of cases are associated with a change in DNA (this is known as a genetic mutation).
Earlier this month, members of the Parkinson’s Foundation team joined thousands of movement disorder specialists in Vancouver, Canada.
They were on site for the International Congress of Parkinson’s Disease and Movement Disorders, which brings together neurologists with expertise in Parkinson’s and similar diseases to share the latest in advancements in research and care.
“The experience of living with Parkinson’s disease (PD) is unique to each individual. We really strive to listen to our patients, caregivers, families, providers and the community in creating an all-encompassing supportive services program that helps people to adapt and live well with Parkinson’s across the continuum and at all stages of the disease,” said Amy Lemen, MA, LCSW.
Does summer have you thinking about traveling somewhere new or enjoying the great outdoors? Follow these tips on Parkinson’s disease (PD) and travel, sun safety and heat exhaustion:
Vacations are a big part of living well. Many people choose to travel during summer, but with Parkinson’s there are some extra things to consider before hitting the road. These tips can help you stay safe while you travel:
Nutrition plays a very important role in the management of Parkinson’s disease (PD). People with PD may experience constipation, food-medication interactions, difficulty swallowing and weight loss. Establishing and maintaining good eating habits can help manage these issues and improve overall well-being while navigating Parkinson’s.
Deep brain stimulation (DBS) is a therapy that has been administered to over 100,000 patients worldwide. The majority of people receiving deep brain stimulation live with a diagnosis of Parkinson’s disease (PD). The technique has been helpful for improving tremor, on-off fluctuations, dyskinesia, and off time. One of the main limitations of deep brain stimulation has been that it requires brain surgery and carries an associated risk of hemorrhage, stroke, infection, and hardware failure.
My Parkinson’s spouse has many physicians, as PD has taken its toll on so much of his body. I go to most his medical appointments as I am his constant observer, and I am the one fighting for his health. I have decided to write about having a voice when speaking with physicians as I find this extremely important, not only for me to be aware, but most importantly for him to get the best care as possible.
Summer is the time for long drives, late sunsets and the outdoors. However, direct and prolonged exposure to the summer sun can also result in sunburns and over time, skin cancer. Skin cancer is the most common cancer in the U.S. and it is even more of a threat for people with Parkinson’s disease (PD) because they have a higher risk of developing malignant melanoma. Skin cancer is preventable. Taking proper precautions and knowing what to look for can save your life.