Call Our HELPLINE: 1-800-4PD-INFO (473-4636)

The Parkinson’s Foundation Joins Global Community at 4th World Parkinson Congress in Portland, OR

New York, NY & Miami, FL —  The Parkinson's Foundation, recently formed by the merger of the National Parkinson Foundation® (NPF®) and the Parkinson’s Disease Foundation® (PDF®), is pleased to join the global Parkinson’s community this week at the 4th World Parkinson Congress (WPC) in Portland, OR.  The Parkinson’s Foundation offers interactive programs to encourage the Congress’ 4,000 delegates and those participating online — researchers, health professionals and patient leaders — to join us in advancing the care and cure for Parkinson’s.  Join the Parkinson’s Foundation’s interactive programs by visiting www.parkinson.org/wpc and www.pdf.org/wpc, and using #Together4PD.

“The World Parkinson Congress has become a transformational event for the Parkinson’s community.  It is the single global event where Parkinson’s clinicians and scientists interface directly with the community,” said Michael S. Okun, M.D., National Medical Director of the Parkinson’s Foundation.  “At the Parkinson’s Foundation, we are particularly enthusiastic about the WPC because its philosophy aligns so close with our own.  We both know that intersection of science and care with patients is key to advancing care and research.”

The Parkinson’s Foundation estimates that as many as 10 million people worldwide live with Parkinson’s.  The legacy organizations of the Parkinson’s Foundation have been instrumental in helping to create and support the World Parkinson Congress, advocating for the creation of a space where the global Parkinson’s community can come together to improve understanding and promote advocacy worldwide and to potentially shape future research, treatment and care.

This week, the Parkinson’s Foundation brings a team of more than 100 staff, patient advocates and Foundation-supported researchers and health professionals to the Congress.

Here is how to participate in our interactive programs in-person or online:

  • Learn about Parkinson’s and Influence Research: visit the Parkinson’s Foundation booth (#406) at the Congress to browse educational materials and meet experts in the field.  Meet Dr. Okun at the booth and receive a signed copy of Parkinson’s Treatment: 10 Secrets to a Happier Life, or visit the “Book Nook Panel” on Thursday, September 22 at 5:30 PM PT to hear him discuss the book.  Vote in the 3rd Community Choice Research Awards, which seek feedback from the community to align scientific research with patient priorities and accelerate solutions for unmet needs in Parkinson’s.
  • See the Future of Parkinson’s Care: join a Foundation-sponsored pre-congress educational session, Changing how care is delivered: A success the Parkinson's community can take pride in, on Tuesday, September 20, from 2:00 PM to 3:15 PM PT, discussing our innovative evidence-based efforts to improve patient care and advocacy.
  • Learn about Parkinson’s Foundation Programmatic Advances: see results of Foundation programs seeking a cure and improved patient care and support, in which we have invested $365 million.  Visit our 10 scientific abstracts as follows:
    • Abstract #1335: Simpler prescribing patterns are associated with a lower rate of falls (Wednesday, September 21, 5:15 PM to 6:45 PM PT; Thursday, September 22, 11:30 AM to 1:30 PM PT, P31.17)
    • Abstract #1243: Engaging people with Parkinson’s in determining and defining research priorities: The PDF Community Choice Research Award (Thursday, September 22, 11:30 AM to 1:30 PM PT, P23.25)
    • Abstract #1077: Injury rates for people with Parkinson's are predicted by Parkinson’s severity independent of demographic data (Thursday, September 22 11:30 AM to 1:30 PM PT, P29.01)
    • Abstract #885: Outcomes of the PDF Community Choice Research Award: a workshop to address maintaining cognitive function in Parkinson’s (Thursday, September 22, 11:30 AM to 1:30 PM PT, P26.17)
    • Abstract #777: Prevalence of Parkinson’s disease in North America: a nationwide epidemiological study sharing available databases (Thursday September 22, 11:30 AM to 1:30 PM PT, P01.04)
    • Abstract #1152: Does gender influence the types of questions asked by people living with Parkinson’s? (Friday, September 23, 11:30 AM to 1:30 PM PT, P21.07)
    • Abstract #1231: Driving patient engagement in Parkinson’s clinical research: lessons learned in developing successful partnerships with study sponsors (Friday, September 23, 11:30 AM to 1:30 PM PT, P35.22)
    • Abstract #1259: Higher mortality with antipsychotic medication use in individuals with Parkinson’s (Friday, September 23, 5:15 PM to 6:45 PM PT, P34.07)
    • Abstract #1241: Parkinson’s Advocates in Research: A Parkinson’s Disease Foundation cutting edge program in patient engagement in research (Friday, September 23, 11:30 AM to 1:30 PM PT, P35.23)
    • Abstract #1236: PDF Women and PD Initiative: identifying and addressing unmet needs (Friday, September 23, 11:30 AM to 1:30 PM PT, P19.13)

“As a person living with Parkinson’s, it is easy to feel alone.  The World Parkinson Congress is an awe-inspiring opportunity to realize that in fact, there is a global network working toward the same goal: a world without Parkinson’s,” said Daniel Novak, Ph.D., of Fort Worth, TX, Chair, PDF People with Parkinson’s Advisory Council.  “I hope my fellow people with Parkinson’s will join the Parkinson’s Foundation — in Portland or online — in moving the cause forward.”

Follow the Parkinson’s Foundation at the 4th WPC by visiting www.parkinson.org.

Tuesday, September 20, 2016
In Memory of Robert Traurig
Wednesday, July 18, 2018

The Parkinson’s Foundation mourns the loss of emeritus board member Robert (Bob) Traurig. From 2004 to 2015, he was a member of the Foundation’s board of directors. Bob is survived by his wife Jacqueline, his daughters Madeline Sackel and Wendy Traurig.

New Study Shows 1.2 Million People in the United States Estimated to be Living with Parkinson’s Disease by 2030
Tuesday, July 10, 2018

Parkinson’s Foundation Reveals Most Comprehensive Estimate of
Parkinson’s Prevalence in North America since the 1970’s

Parkinson’s Foundation Elects Howard D. Morgan Chairman of the Board
Tuesday, June 26, 2018

MIAMI & NEW YORK — June 26, 2018 — The Parkinson’s Foundation today announced the election of Howard D. Morgan as chairman of its board of directors. Mr. Morgan, who previously served as the Vice Chair of the nonprofit organization’s board, is a Partner and the Senior Managing Director of Argand Partners in New York.

Parkinson’s Foundation Announces Five New Members of its People with Parkinson’s Advisory Council
Wednesday, June 13, 2018

NEW YORK & MIAMI — June 13, 2018 — The Parkinson’s Foundation today announced five new members of its People with Parkinson’s Advisory Council.

The Parkinson’s Foundation 2018 Gala in New York City Tuesday, May 8, 2018
Monday, May 14, 2018

The Parkinson’s Foundation 2018 Gala was held at Cipriani 25 Broadway in New York City on Tuesday, May 8, 2018.

Parkinson’s Foundation Adds Alison Herman to its Board of Directors
Tuesday, May 8, 2018

MIAMI – May 9, 2018 – The Parkinson’s Foundation today announced the election of Alison Herman to its board of directors. Herman is senior counsel at Southern Glazer’s Wine & Spirits, a company which has generously supported Parkinson’s Foundation fundraisers.

Statement on Nuplazid Drug
Tuesday, April 10, 2018

On 4/9/18, CNN published an article on the FDA-approved drug, Nuplazid, used to treat hallucinations and psychosis in Parkinson’s disease. The article investigates FDA data showing the number of reported deaths with people taking Nuplazid. Nuplazid was approved by the FDA in 2016 and is manufactured by Acadia Pharmaceuticals.

Parkinson’s Foundation Adds John D. Thomopoulos to its Board of Directors
Monday, March 19, 2018

MIAMI & NEW YORK – March 19, 2018 – The Parkinson’s Foundation today announced the election of John D. Thomopoulos to its board of directors. Thomopoulos is a partner at Ernst & Young.

In Memory of Edythe Kay Marsa
Monday, March 12, 2018

The Parkinson’s Foundation mourns the loss of emeritus board member, Edythe (Edy) Kay Marsa. From 1993 to 2014, she was a member of the Foundation’s board of directors and served on several committees. Edy is survived by her husband William Marsa, who founded the Herbert Kay Parkinson Chapter in honor of her first husband who passed away due to complications from Parkinson’s disease.

Parkinson’s Foundation Announces New Genetic Initiative Connecting Parkinson’s Genetic Data with Clinical Care
Tuesday, March 6, 2018

MIAMI & NEW YORK—March 6, 2018—The Parkinson’s Foundation today announced a new initiative offering genetic testing and counseling to Parkinson’s patients within its Center of Excellence network.

Pages

mail icon

Subscribe to get the latest news on treatments, research and other updates.