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PDF Recognizes Scholars of Edmond J. Safra Visiting Nurse Faculty Program for Outstanding Efforts in Nursing Education

The Parkinson’s Disease Foundation (PDF) congratulates Laura Kelly, Ph.D., R.N., A.N.P.-C., and Cheryl Leiningen, D.N.P., R.N., A.N.P.-C., Scholars of The Edmond J. Safra Visiting Nurse Faculty Program at PDF and 2016 recipients of the program’s annual Alumni Award for outstanding work in nursing education. Drs. Kelly and Leiningen were selected in recognition of their leadership and innovation as it relates to nursing education to improve care in Parkinson’s.

Dr. Kelly is Associate Professor and Program Director at Columbia University School of Nursing and Dr. Leiningen is Assistant Professor at Monmouth University School of Nursing & Health Studies. Both maintain clinical nursing practices.  In 2015, they completed The Edmond J. Safra Visiting Nurse Faculty Program at PDF, a 40-hour accredited “train the trainer” program which improves nursing care in Parkinson’s by training faculty leaders across the US. Afterwards, they worked to translate their experiences into new educational tools to help nursing students understand the patient’s journey living with Parkinson’s disease.

The pair developed a 15-week interactive educational activity “Meet Val and Holly: An experiential tour through the lives of a PD family,” for their nursing curriculums. It walks nursing students through the journey of a person with Parkinson’s and care partner as they cope with a new diagnosis.  Throughout the semester-long activity, as students read the journal of “Val and Holly” and submit assignments, they are introduced to the complexities of Parkinson’s — motor and nonmotor symptoms, medication management, nutrition, home safety, care partner stress, adaptive equipment and resources — and the role that nurses can play in helping people to cope and live well. Recently, Drs. Kelly and Leiningen presented their work on this tool at the 4th World Parkinson Congress in Portland, OR.

“When I was an undergraduate nursing student, my textbook included exactly one sentence on Parkinson’s and years later, I found that not much had changed.  But now, because of the efforts of educators like Drs. Kelly and Leiningen, we can be hopeful for a different kind of future for nursing care in Parkinson’s,” says Gwyn Vernon, M.S.N., R.N., C.R.N.P., Co-Founder and National Director of the program. “Congratulations to Dr. Kelly and Dr. Leiningen on well-deserved recognition for their work to prepare the next generation of nurses.”

About The Edmond J. Safra Visiting Nurse Faculty Program at PDF

As part of its strategy to end Parkinson's disease, PDF mobilizes leaders in science, health care and the patient community. The cornerstone of its programming for health leaders is the Edmond J. Safra Visiting Nurse Faculty Program at the Parkinson's Disease Foundation, a 40-hour accredited "train the trainer" program which improves nursing care in Parkinson's disease by training faculty leaders. The program has trained more than 190 nurse faculty, who are in turn, sharing their knowledge with 18,000 undergraduate nursing students each year to ensure that the next generation of nurses is prepared to fight Parkinson's disease on the front lines. Many of the program's alumni have gone on to become local leaders in Parkinson's disease care, with some developing into national leaders who are changing nursing education. The program has been housed at the Parkinson's Disease Foundation since 2014.

Wednesday, October 19, 2016
In Memory of Robert Traurig
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The Parkinson’s Foundation mourns the loss of emeritus board member Robert (Bob) Traurig. From 2004 to 2015, he was a member of the Foundation’s board of directors. Bob is survived by his wife Jacqueline, his daughters Madeline Sackel and Wendy Traurig.

New Study Shows 1.2 Million People in the United States Estimated to be Living with Parkinson’s Disease by 2030
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Parkinson’s Foundation Reveals Most Comprehensive Estimate of
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Parkinson’s Foundation Elects Howard D. Morgan Chairman of the Board
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MIAMI & NEW YORK — June 26, 2018 — The Parkinson’s Foundation today announced the election of Howard D. Morgan as chairman of its board of directors. Mr. Morgan, who previously served as the Vice Chair of the nonprofit organization’s board, is a Partner and the Senior Managing Director of Argand Partners in New York.

Parkinson’s Foundation Announces Five New Members of its People with Parkinson’s Advisory Council
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NEW YORK & MIAMI — June 13, 2018 — The Parkinson’s Foundation today announced five new members of its People with Parkinson’s Advisory Council.

The Parkinson’s Foundation 2018 Gala in New York City Tuesday, May 8, 2018
Monday, May 14, 2018

The Parkinson’s Foundation 2018 Gala was held at Cipriani 25 Broadway in New York City on Tuesday, May 8, 2018.

Parkinson’s Foundation Adds Alison Herman to its Board of Directors
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MIAMI – May 9, 2018 – The Parkinson’s Foundation today announced the election of Alison Herman to its board of directors. Herman is senior counsel at Southern Glazer’s Wine & Spirits, a company which has generously supported Parkinson’s Foundation fundraisers.

Statement on Nuplazid Drug
Tuesday, April 10, 2018

On 4/9/18, CNN published an article on the FDA-approved drug, Nuplazid, used to treat hallucinations and psychosis in Parkinson’s disease. The article investigates FDA data showing the number of reported deaths with people taking Nuplazid. Nuplazid was approved by the FDA in 2016 and is manufactured by Acadia Pharmaceuticals.

Parkinson’s Foundation Adds John D. Thomopoulos to its Board of Directors
Monday, March 19, 2018

MIAMI & NEW YORK – March 19, 2018 – The Parkinson’s Foundation today announced the election of John D. Thomopoulos to its board of directors. Thomopoulos is a partner at Ernst & Young.

In Memory of Edythe Kay Marsa
Monday, March 12, 2018

The Parkinson’s Foundation mourns the loss of emeritus board member, Edythe (Edy) Kay Marsa. From 1993 to 2014, she was a member of the Foundation’s board of directors and served on several committees. Edy is survived by her husband William Marsa, who founded the Herbert Kay Parkinson Chapter in honor of her first husband who passed away due to complications from Parkinson’s disease.

Parkinson’s Foundation Announces New Genetic Initiative Connecting Parkinson’s Genetic Data with Clinical Care
Tuesday, March 6, 2018

MIAMI & NEW YORK—March 6, 2018—The Parkinson’s Foundation today announced a new initiative offering genetic testing and counseling to Parkinson’s patients within its Center of Excellence network.

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