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Parkinson’s Foundation Welcomes New Patient Advisors

Five New Members Added to Advisory Council to Improve Lives of People Living With Parkinson’s

New York, NY, and Miami, FL — The Parkinson’s Foundation is pleased to welcome five new members to its People with Parkinson’s Advisory Council.  The appointments reflect the foundation’s ongoing commitment to engage with the community in its work to create a world without Parkinson’s disease.

“The Parkinson’s Foundation has a track record of listening and responding to the needs of the Parkinson’s community,” said John L. Lehr, chief executive officer, Parkinson’s Foundation.  “We look forward to partnering with our advisors to improve our programs and to ensure that people with Parkinson’s live their best lives today.”

The People with Parkinson’s Advisory Council, established in 2006, is the first patient advisory council in the Parkinson’s space.  Its members have guided the foundation’s work and driven improvements in research, care and patient support.  For example, members have shed light on unmet needs, including underrecognized symptoms such as fatigue and constipation, and have prompted new programs, such as the Women and PD Initiative and the Community Choice Research Awards.

“As people who live with Parkinson’s, our members represent a community of 10 million people worldwide.  We commit ourselves to working on their behalf every single day,” said Daniel Novak, Ph.D., of Fort Worth, TX, chair of the advisory council.  “We applaud the Parkinson’s Foundation for continuing to collaborate with people with Parkinson’s and care partners.  We are stronger together.”

The advisory council’s newest members, elected for a term of three years, represent a wide range of communities, professions and volunteer experiences.  They include the following individuals:

Caryn Balaban, M.P.H., of Phoenix, AZ: a retired healthcare marketing executive, who is care partner to her husband who lives with Parkinson’s.

Daniel DeWitt, Psy.D., of Grand Rapids, MI: a licensed psychologist who has expertise caring for individuals with chronic illnesses.

David Malarkey, D.V.M., Ph.D., of Cary, NC: a veterinary pathologist and research scientist whose scientific career spans 25 years and 100 published papers.

Dana Seyfried, M.A., of Roslyn, NY: a professional who works in animal welfare and a former marketing manager, who is care partner to her father who lives with Parkinson’s.

Robert “Kelly” Sweeney, of Portland, OR: a retired business development and program manager, whose career in the technology industry spanned nearly 40 years.

To learn more and see our full list of advisors, visit www.parkinson.org/ppac.

About Parkinson’s Disease
Parkinson’s disease is a progressive neurological disorder that affects nearly one million people in the US and over 10 million worldwide.  Parkinson’s is the second most common neurodegenerative disease after Alzheimer’s and is the 14th leading cause of death in the US. It is associated with a loss of motor control (e.g., shaking or tremor at rest and lack of facial expression) as well as non-motor symptoms (e.g., depression A mood disorder whose symptoms can include a persistent sad or empty mood, feelings of hopelessness or pessimism, irritability and loss of interest or pleasure in previously enjoyable activities. and anxiety A feeling of nervousness, worried thoughts and physical distress.).  Although promising research is being conducted, there is currently no cure for Parkinson’s disease.

About the Parkinson’s Foundation
The Parkinson’s Foundation is working toward a world without Parkinson’s disease.  Formed by the merger of the National Parkinson Foundation and the Parkinson’s Disease Foundation, the mission of the Parkinson’s Foundation is to invest in promising scientific research that will end Parkinson’s disease and improve the lives of people with Parkinson’s, and their families, through improved treatments, support and the best care.  For more information, visit www.parkinsonsfoundation.org or call (800) 4PD-INFO (473-4636) or (800) 457-6676.

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NEW YORK & MIAMI — November 1, 2018 — The Parkinson’s Foundation is proud to announce that it is requesting applications for community grants to be awarded nationwide for health, wellness and education programs that address unmet needs in the Parkinson’s disease (PD) community. In 2019, the Parkinson’s Foundation will award $1.2 million in community grants.

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The 4-star rating is the highest rating given only to nonprofit organizations that exceed industry standards and outperform peers, while demonstrating strong financial health and commitment to accountability and transparency.

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On September 20, 2018, the U.S.

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