Parkinson's Foundation: Better Lives. Together.
Call Our HELPLINE: 1-800-4PD-INFO (473-4636)

Parkinson’s Foundation Welcomes New Patient Advisors

Five New Members Added to Advisory Council to Improve Lives of People Living With Parkinson’s

New York, NY, and Miami, FL — The Parkinson’s Foundation is pleased to welcome five new members to its People with Parkinson’s Advisory Council.  The appointments reflect the foundation’s ongoing commitment to engage with the community in its work to create a world without Parkinson’s disease.

“The Parkinson’s Foundation has a track record of listening and responding to the needs of the Parkinson’s community,” said John L. Lehr, chief executive officer, Parkinson’s Foundation.  “We look forward to partnering with our advisors to improve our programs and to ensure that people with Parkinson’s live their best lives today.”

The People with Parkinson’s Advisory Council, established in 2006, is the first patient advisory council in the Parkinson’s space.  Its members have guided the foundation’s work and driven improvements in research, care and patient support.  For example, members have shed light on unmet needs, including underrecognized symptoms such as fatigue and constipation, and have prompted new programs, such as the Women and PD Initiative and the Community Choice Research Awards.

“As people who live with Parkinson’s, our members represent a community of 10 million people worldwide.  We commit ourselves to working on their behalf every single day,” said Daniel Novak, Ph.D., of Fort Worth, TX, chair of the advisory council.  “We applaud the Parkinson’s Foundation for continuing to collaborate with people with Parkinson’s and care partners.  We are stronger together.”

The advisory council’s newest members, elected for a term of three years, represent a wide range of communities, professions and volunteer experiences.  They include the following individuals:

Caryn Balaban, M.P.H., of Phoenix, AZ: a retired healthcare marketing executive, who is care partner to her husband who lives with Parkinson’s.

Daniel DeWitt, Psy.D., of Grand Rapids, MI: a licensed psychologist who has expertise caring for individuals with chronic illnesses.

David Malarkey, D.V.M., Ph.D., of Cary, NC: a veterinary pathologist and research scientist whose scientific career spans 25 years and 100 published papers.

Dana Seyfried, M.A., of Roslyn, NY: a professional who works in animal welfare and a former marketing manager, who is care partner to her father who lives with Parkinson’s.

Robert “Kelly” Sweeney, of Portland, OR: a retired business development and program manager, whose career in the technology industry spanned nearly 40 years.

To learn more and see our full list of advisors, visit www.parkinson.org/ppac.

About Parkinson’s Disease
Parkinson’s disease is a progressive neurological disorder that affects nearly one million people in the US and over 10 million worldwide.  Parkinson’s is the second most common neurodegenerative disease after Alzheimer’s and is the 14th leading cause of death in the US. It is associated with a loss of motor control (e.g., shaking or tremor at rest and lack of facial expression) as well as non-motor symptoms (e.g., depression A mood disorder whose symptoms can include a persistent sad or empty mood, feelings of hopelessness or pessimism, irritability and loss of interest or pleasure in previously enjoyable activities. and anxiety A feeling of nervousness, worried thoughts and physical distress.).  Although promising research is being conducted, there is currently no cure for Parkinson’s disease.

About the Parkinson’s Foundation
The Parkinson’s Foundation is working toward a world without Parkinson’s disease.  Formed by the merger of the National Parkinson Foundation and the Parkinson’s Disease Foundation, the mission of the Parkinson’s Foundation is to invest in promising scientific research that will end Parkinson’s disease and improve the lives of people with Parkinson’s, and their families, through improved treatments, support and the best care.  For more information, visit www.parkinsonsfoundation.org or call (800) 4PD-INFO (473-4636) or (800) 457-6676.

Wednesday, May 24, 2017
Parkinson’s Foundation Increases Funding to $6.2 Million to Advance Parkinson’s Research
Tuesday, August 14, 2018

NEW YORK & MIAMI — August 14, 2018 — The Parkinson’s Foundation announced today an increased investment of $6.2 million across 53 research grants to support the work of promising scientists in the field of Parkinson's disease (PD) in 2018.

PD Gladiators Merges with the Parkinson’s Foundation Expanding Reach in Greater Atlanta Parkinson’s Community
Wednesday, August 1, 2018

ATLANTA – August 1, 2018—PD Gladiators, Inc., an Atlanta-based nonprofit organization focused on combatting Parkinson’s disease (PD) with vigorous exercise, has merged with the Parkinson’s Foundation (PF), a non-profit organization whose mission is to make life better for people with PD worldwide through expert care and research.

Parkinson’s Foundation Partners with Medscape Education to Deliver Patient Education
Monday, July 30, 2018

July 30, 2018—The Parkinson’s Foundation has collaborated with Medscape Education to launch an online learning program entitled “Parkinson’s Disease Psychosis: A Learning Destination for Care Partners and Patients,” available on Medscape’s patient portal, WebMD Education.

Parkinson’s Foundation Designates Three Centers of Excellence in Parkinson’s Care: Global Network Expands to 45 Parkinson’s Centers
Tuesday, July 24, 2018

MIAMI & NEW YORK CITY — July 24, 2018 — The Parkinson’s Foundation today announced the addition of three new Centers of Excellence to its global network: Cleveland Clinic; Medical University of South Carolina; and University of Iowa Hospitals and Clinics.

Parkinson’s Foundation Funds $450,000 for Local Parkinson’s Programs in Seven Cities Across the Country
Monday, July 23, 2018

NEW YORK & MIAMI — July 23, 2018 — The Parkinson's Foundation today announced it will fund nearly $450,000 to local community grants in seven cities that hosted the Foundation's annual fundraiser, Moving Day, A Walk for Parkinson's, in 2017. These grants will further the health, wellness and education of people with Parkinson's disease (PD).

In Memory of Robert Traurig
Wednesday, July 18, 2018

The Parkinson’s Foundation mourns the loss of emeritus board member Robert (Bob) Traurig. From 2004 to 2015, he was a member of the Foundation’s board of directors. Bob is survived by his wife Jacqueline, his daughters Madeline Sackel and Wendy Traurig.

New Study Shows 1.2 Million People in the United States Estimated to be Living with Parkinson’s Disease by 2030
Tuesday, July 10, 2018

Parkinson’s Foundation Reveals Most Comprehensive Estimate of
Parkinson’s Prevalence in North America since the 1970’s

Parkinson’s Foundation Elects Howard D. Morgan Chairman of the Board
Tuesday, June 26, 2018

MIAMI & NEW YORK — June 26, 2018 — The Parkinson’s Foundation today announced the election of Howard D. Morgan as chairman of its board of directors. Mr. Morgan, who previously served as the Vice Chair of the nonprofit organization’s board, is a Partner and the Senior Managing Director of Argand Partners in New York.

Parkinson’s Foundation Announces Five New Members of its People with Parkinson’s Advisory Council
Wednesday, June 13, 2018

NEW YORK & MIAMI — June 13, 2018 — The Parkinson’s Foundation today announced five new members of its People with Parkinson’s Advisory Council.

The Parkinson’s Foundation 2018 Gala in New York City Tuesday, May 8, 2018
Monday, May 14, 2018

The Parkinson’s Foundation 2018 Gala was held at Cipriani 25 Broadway in New York City on Tuesday, May 8, 2018.

Pages

mail icon

Subscribe to get the latest news on treatments, research and other updates.