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The National Parkinson Foundation Announces Initiative to Further Define Stages of Parkinson’s Disease

Currently, there is no one definition of what it means to have advanced Parkinson’s disease
 

Initiative will support the creation of a tool to help physicians assess changes in the disease
 

MIAMI, FL — The National Parkinson Foundation (NPF), a division of the Parkinson’s Foundation, is proud to announce a collaboration with The Cure Parkinson’s Trust (CPT), AbbVie, and a steering committee comprised of physicians around the world to create a clinical questionnaire that can be used to define the transition between early/mid Parkinson’s disease (PD) and advanced PD.

Currently, there is no one definition of what it means to have “advanced” PD. For routine clinical practice, current guidelines do not recommend the use of any scales for staging the disease.  Scales used by expert neurologists to measure Parkinson’s symptoms exist, but there is no evidence-based guidance for how to translate scores to a treatment approach.

Hubert Fernandez, MD, of the Cleveland Clinic, said, “By characterizing the profile of patients that an expert neurologist would consider for options beyond first-line oral medications, we can help patients to get the benefits of expert insight even if they can’t make it to a movement disorders center.  We have assembled a strong team of physicians, industry experts and patient advocates sharing the common goal of improving care for people living with Parkinson’s.”

Development of this tool will attempt to standardize care assessment for all medical professionals involved in the identification and treatment of this progressive and disabling neurological disease.

“Research has shown a gulf between expert care and average care.  Together, NPF and AbbVie are working to help identify the criteria that expert neurologists use to evaluate a patient for a change in intervention,” said Peter N. Schmidt, PhD, NPF’s senior vice president, research and professional programs and chief mission officer. “Patients experiencing uncontrolled ‘off’ episodes or other PD symptoms have options.  The goal is to remain one step ahead of disease progression and to help people live well with Parkinson’s.”

The questionnaire will be developed using the following set of criteria:

  1. Describe the phases of PD that links the patient’s status to a stage-appropriate set of potential treatments.
  2. Be based on a simple screening approach that can be used to evaluate patients in any clinical setting.
  3. Be dynamic and updatable to reflect the latest PD guidelines and treatment options.  

“AbbVie is committed to improving the lives of patients living with Parkinson’s disease through the advancement of medical science and education,” said Michael Norton, vice president of U.S. Medical Affairs, AbbVie. “Our partnership in this initiative is a reflection of that commitment and will help bridge a currently unfilled gap in patient care.”

This tool for clinical evaluation will initially be piloted at NPF Centers of Excellence participating in the Parkinson’s Outcomes Project, the largest clinical study of PD in the world.  It will be available to all clinicians in the second half of 2017.

About Parkinson's Disease (PD)
Parkinson's disease is a progressive neurological disorder that affects one million people in the US and over 10 million worldwide.  Parkinson's is the second most common neurodegenerative disease after Alzheimer's and is the 14th leading cause of death in the US.  It is associated with a loss of motor control (e.g., shaking or tremor at rest and lack of facial expression) as well as non-motor symptoms (e.g., depression A mood disorder whose symptoms can include a persistent sad or empty mood, feelings of hopelessness or pessimism, irritability and loss of interest or pleasure in previously enjoyable activities. and anxiety A feeling of nervousness, worried thoughts and physical distress.).  Although promising research is being conducted, there is currently no cure for Parkinson's disease.

Monday, January 9, 2017
Parkinson's Foundation Hosts National Forum for Women Living with Parkinson's Disease
Wednesday, November 7, 2018

MIAMI & NEW YORK — NOVEMBER 7, 2018 —The Parkinson’s Foundation hosted the first national forum for women with Parkinson’s disease (PD) on October 19 at Baylor College of Medicine, a Parkinson’s Foundation Center of Excellence, in Houston, TX.

Parkinson's Foundation Announces Expansion of Community Grants Program to Address Unmet Community Needs
Thursday, November 1, 2018

The Parkinson’s Foundation is requesting applications for community grants to be awarded nationwide for health, wellness and education programs that address unmet needs in the PD community. The Foundation will award $1.2 million in community grants in 2019.

Parkinson’s Foundation Announces Expansion of Community Grants Program to Address Unmet Community Needs
Thursday, November 1, 2018

NEW YORK & MIAMI — November 1, 2018 — The Parkinson’s Foundation is proud to announce that it is requesting applications for community grants to be awarded nationwide for health, wellness and education programs that address unmet needs in the Parkinson’s disease (PD) community. In 2019, the Parkinson’s Foundation will award $1.2 million in community grants.

Parkinson’s Foundation Hosts Free Bilingual Caregiver Summit
Tuesday, October 30, 2018

MIAMI AND NEW YORK—October 30, 2018—The Parkinson’s Foundation will host a Caregiver Summit – “Cumbre Para Cuidadores” – geared specifically toward caregivers of people living with Parkinson’s disease (PD).

Parkinson’s Foundation Adds James Monhart to its Board of Directors
Monday, October 29, 2018

NEW YORK & MIAMI, October 29, 2018—The Parkinson’s Foundation today announced the election of James F.T. Monhart to its board of directors.

Parkinson’s Foundation Earns 4-Star Rating from Charity Navigator
Monday, October 22, 2018

NEW YORK AND MIAMI—October 22, 2018—The Parkinson’s Foundation has achieved a 4-star rating from Charity Navigator, the nation's largest and most-utilized evaluator of charities.

The 4-star rating is the highest rating given only to nonprofit organizations that exceed industry standards and outperform peers, while demonstrating strong financial health and commitment to accountability and transparency.

Parkinson’s Foundation Awards New Nurse Faculty Grant to Four Nurses Specializing in Parkinson’s Care
Thursday, October 11, 2018

NEW YORK & MIAMI — October 11, 2018 — The Parkinson’s Foundation announced that it has awarded its first-ever Parkinson’s Foundation Nurse Faculty Award to four nurses, totaling $30,000. The nurses, all graduates of the Edmond J.

Update on NUPLAZID — FDA finds no new or unexpected safety risks
Friday, September 21, 2018

On September 20, 2018, the U.S.

Parkinson’s Foundation Extends Bilingual National Helpline Hours
Tuesday, September 18, 2018

NEW YORK & MIAMI — September 18, 2018 — The Parkinson’s Foundation announced today that its toll-free Helpline, 1-800-4PD-INFO, will extend its hours, answering calls in English and Spanish, to help make life better for people with Parkinson’s disease (PD) and their families.

Parkinson’s Foundation Hosts Allied Team Training for Parkinson’s in Atlanta
Tuesday, September 11, 2018

NEW YORK & MIAMI—September 11, 2018—The Parkinson’s Foundation today announced the location of its signature professional education program course, Allied Team Training for Parkinson’s, ATTP®, for health care professionals treating patients with Parkinson’s disease, in Atlanta.

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