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Apply to the Parkinson’s Foundation People with Parkinson's Advisory Council by Monday, December 19

Are you interested in helping the Parkinson’s Foundation (PF) work toward a world without Parkinson’s? Apply to the People with Parkinson's Advisory Council by Monday, December 19.

In August, the Parkinson’s Disease Foundation and the National Parkinson Foundation merged to form the Parkinson’s Foundation. We are seeking advisors from the community to help us kick off a new and exciting era in the Parkinson’s community.

Service on PPAC provides a unique opportunity for community members to bring their professional and volunteer skills to bear on PF’s mission of finding a cure for Parkinson’s and helping those who live with the disease. People living with Parkinson’s or care partners are eligible to apply for a three-year term.

What is PPAC?

The People with Parkinson's Advisory Council is comprised of people with Parkinson’s and care partners who serve as advisors to the Parkinson’s Foundation.

How Do Members Work with PF?

It is critical to PF to engage people with Parkinson’s as partners in every part of our work. With this in mind, responsibilities of PPAC members may include, but are not limited to:

  • Guiding PF’s strategy to invest in promising scientific research that will end Parkinson’s disease and improve the lives of people with Parkinson’s and their families, through improved treatments, support and the best care;
  • Reviewing and providing recommendations on programs, initiatives, policies and materials that are conducted to advance PF goals;
  • Providing input on unmet needs within the PD community based on an understanding of the community at-large;
  • Serving as ambassadors for PF in the PD community and the general public;
  • Identifying and coordinating opportunities for sharing PF informational and educational resources;
  • Supporting PF through organizing fundraising events within the community and/or personal contributions;
  • Serving on PPAC and/or PF committees and working groups; and
  • Attending PPAC conference calls and two in-person meetings per year in NYC and Miami.

How Long is the Term?

PF is currently soliciting applications from individuals who are interested in serving on PPAC for three years, beginning in 2017 and ending in 2020.

 

Monday, November 21, 2016
The Parkinson’s Foundation 2018 Gala in New York City Tuesday, May 8, 2018
Monday, May 14, 2018

The Parkinson’s Foundation 2018 Gala was held at Cipriani 25 Broadway in New York City on Tuesday, May 8, 2018.

Parkinson’s Foundation Adds Alison Herman to its Board of Directors
Tuesday, May 8, 2018

MIAMI – May 9, 2018 – The Parkinson’s Foundation today announced the election of Alison Herman to its board of directors. Herman is senior counsel at Southern Glazer’s Wine & Spirits, a company which has generously supported Parkinson’s Foundation fundraisers.

Statement on Nuplazid Drug
Tuesday, April 10, 2018

On 4/9/18, CNN published an article on the FDA-approved drug, Nuplazid, used to treat hallucinations and psychosis in Parkinson’s disease. The article investigates FDA data showing the number of reported deaths with people taking Nuplazid. Nuplazid was approved by the FDA in 2016 and is manufactured by Acadia Pharmaceuticals.

Parkinson’s Foundation Adds John D. Thomopoulos to its Board of Directors
Monday, March 19, 2018

MIAMI & NEW YORK – March 19, 2018 – The Parkinson’s Foundation today announced the election of John D. Thomopoulos to its board of directors. Thomopoulos is a partner at Ernst & Young.

In Memory of Edythe Kay Marsa
Monday, March 12, 2018

The Parkinson’s Foundation mourns the loss of emeritus board member, Edythe (Edy) Kay Marsa. From 1993 to 2014, she was a member of the Foundation’s board of directors and served on several committees. Edy is survived by her husband William Marsa, who founded the Herbert Kay Parkinson Chapter in honor of her first husband who passed away due to complications from Parkinson’s disease.

Parkinson’s Foundation Announces New Genetic Initiative Connecting Parkinson’s Genetic Data with Clinical Care
Tuesday, March 6, 2018

MIAMI & NEW YORK—March 6, 2018—The Parkinson’s Foundation today announced a new initiative offering genetic testing and counseling to Parkinson’s patients within its Center of Excellence network.

Delegates From The Parkinson’s Community Converge On Capitol Hill To Advocate For Critical Research Funding
Monday, March 5, 2018

—2018 Parkinson’s Policy Forum Co-Sponsored by the Parkinson’s Foundation and the Michael J. Fox Foundation for Parkinson’s Research—

Parkinson’s Foundation Appoints Jena E. Abernathy to Board of Directors
Tuesday, February 27, 2018

MIAMI – February 27, 2018 –  The Parkinson’s Foundation today announced the election of Jena E. Abernathy to its board of directors.

Parkinson’s Foundation Moving Day Walks Fund Local Parkinson’s Programs in Seven Cities for Spring 2018
Friday, February 16, 2018

NEW YORK & MIAMI, FEBRUARY 16, 2018 — The Parkinson’s Foundation is proud to announce that Moving Day, A Walk for Parkinson’s, has funded more than $17 million in mission services to make life better for people living with Parkinson’s disease (PD).

Terranova’s Stephen Bittel Donates $450,000 to Parkinson’s Foundation to Support Expansion of Centers of Excellence Network
Thursday, February 1, 2018

MIAMI – February 1, 2018 – The Parkinson’s Foundation today announced that Stephen Bittel, chairman and founder of Terranova, has made a $450,000 donation to support the expansion of the foundation’s Centers o

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