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New Study Shows 1.2 Million People in the United States Estimated to be Living with Parkinson’s Disease by 2030

Parkinson’s Foundation Reveals Most Comprehensive Estimate of
Parkinson’s Prevalence in North America since the 1970’s

NEW YORK & MIAMI, July 10, 2018 — A Parkinson’s Foundation study recently published in the scientific journal, npj Parkinson’s Disease, reveals findings from the most comprehensive estimate of Parkinson’s disease in the United States and Canada to date. The Foundation’s “Parkinson’s Prevalence Project” estimates that 930,000 people in the United States will be living with the disease by 2020, further increasing to 1.2 million people by 2030.

parkinson's Prevalance Project infographic parkinson's Prevalance by State map"Our knowledge of Parkinson’s has evolved significantly and so should our understanding of the population that has this disease,” said James Beck, PhD, Parkinson’s Foundation Chief Scientific Officer and contributing author on the study. “These findings will help attract the attention of federal and state government as well as the pharmaceutical industry to the growing need and urgency in addressing Parkinson’s disease.”

The Parkinson’s Foundation formed the “Parkinson’s Prevalence Project” in 2014 to determine an updated estimate of the prevalence of Parkinson’s throughout North America. Prior estimates were deemed outdated and based on a small number of cases from small regional subpopulations – such as a study performed in a rural Mississippi county finding 26 cases was long used as the benchmark estimate for Parkinson’s prevalence in the US. The Parkinson’s Prevalence Project revised estimate draws from larger and more diverse populations and is almost double the previous estimate:

  • The research combined data from a multi-study sampling strategy in diverse geographic regions including California, Minnesota, Hawaii, and Ontario, Canada and compared those results to U.S. Medicare data.
  • The estimated overall prevalence of Parkinson’s among those 45 years old or older is 572 per 100,000, which translates into 680,000 individuals in the U.S. who are at least 45 years old with Parkinson’s in 2010, the date of the last official U.S. census.
  • The prevalence of Parkinson’s will rise to approximately 930,000 in 2020 and 1,238,000 in 2030 based on the U.S. Census Bureau population projections.

Connie Marras, MD, PhD, lead author on the study and movement disorder neurologist at the Movement Disorders Centre at Toronto Western Hospital, a Parkinson’s Foundation Center of Excellence and the Edmond J. Safra Program in Parkinson’s research said, “Like Alzheimer’s disease, Parkinson’s affects primarily older individuals and poses a significant health care burden, as well as a real challenge on how to care for the aging population over the coming decades.”

Added John L. Lehr, CEO of the Parkinson’s Foundation: “One million Americans living with Parkinson’s by 2020 highlights the growing importance of optimizing care and treatment for people with the disease today. We continue to support scientific research, including through our ‘Parkinson’s Outcomes Project,’ the largest clinical study of Parkinson’s in the world, to help better understand what causes the disease, how to treat it and potentially stop progression and improve the lives of everyone living with the disease.”

Later this year, the Parkinson’s Foundation will be leading phase two of the prevalence study to better understand, on a national scale, how many people are diagnosed each year with Parkinson’s as well as the rate of mortality of people with the disease.

For more information about Parkinson’s statistics, visit Parkinson.org/Statistics.

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About the Parkinson’s Foundation 
The Parkinson’s Foundation makes life better for people with Parkinson’s disease by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience and passion of our global Parkinson’s community. For more information, visit www.parkinson.org or call (800) 4PD-INFO (473-4636).

About Parkinson’s Disease 
Affecting nearly one million Americans and 10 million worldwide, Parkinson’s disease is the second-most common neurodegenerative disease after Alzheimer’s and is the 14th-leading cause of death in the United States. It is associated with a progressive loss of motor control (e.g., shaking or tremor at rest and lack of facial expression), as well as non-motor symptoms (e.g., depression and anxiety). There is no cure for Parkinson’s and 60,000 new cases are diagnosed each year in the United States alone.

 

Tuesday, July 10, 2018
Parkinson's Foundation Hosts National Forum for Women Living with Parkinson's Disease
Wednesday, November 7, 2018

MIAMI & NEW YORK — NOVEMBER 7, 2018 —The Parkinson’s Foundation hosted the first national forum for women with Parkinson’s disease (PD) on October 19 at Baylor College of Medicine, a Parkinson’s Foundation Center of Excellence, in Houston, TX.

Parkinson's Foundation Announces Expansion of Community Grants Program to Address Unmet Community Needs
Thursday, November 1, 2018

The Parkinson’s Foundation is requesting applications for community grants to be awarded nationwide for health, wellness and education programs that address unmet needs in the PD community. The Foundation will award $1.2 million in community grants in 2019.

Parkinson’s Foundation Announces Expansion of Community Grants Program to Address Unmet Community Needs
Thursday, November 1, 2018

NEW YORK & MIAMI — November 1, 2018 — The Parkinson’s Foundation is proud to announce that it is requesting applications for community grants to be awarded nationwide for health, wellness and education programs that address unmet needs in the Parkinson’s disease (PD) community. In 2019, the Parkinson’s Foundation will award $1.2 million in community grants.

Parkinson’s Foundation Hosts Free Bilingual Caregiver Summit
Tuesday, October 30, 2018

MIAMI AND NEW YORK—October 30, 2018—The Parkinson’s Foundation will host a Caregiver Summit – “Cumbre Para Cuidadores” – geared specifically toward caregivers of people living with Parkinson’s disease (PD).

Parkinson’s Foundation Adds James Monhart to its Board of Directors
Monday, October 29, 2018

NEW YORK & MIAMI, October 29, 2018—The Parkinson’s Foundation today announced the election of James F.T. Monhart to its board of directors.

Parkinson’s Foundation Earns 4-Star Rating from Charity Navigator
Monday, October 22, 2018

NEW YORK AND MIAMI—October 22, 2018—The Parkinson’s Foundation has achieved a 4-star rating from Charity Navigator, the nation's largest and most-utilized evaluator of charities.

The 4-star rating is the highest rating given only to nonprofit organizations that exceed industry standards and outperform peers, while demonstrating strong financial health and commitment to accountability and transparency.

Parkinson’s Foundation Awards New Nurse Faculty Grant to Four Nurses Specializing in Parkinson’s Care
Thursday, October 11, 2018

NEW YORK & MIAMI — October 11, 2018 — The Parkinson’s Foundation announced that it has awarded its first-ever Parkinson’s Foundation Nurse Faculty Award to four nurses, totaling $30,000. The nurses, all graduates of the Edmond J.

Update on NUPLAZID — FDA finds no new or unexpected safety risks
Friday, September 21, 2018

On September 20, 2018, the U.S.

Parkinson’s Foundation Extends Bilingual National Helpline Hours
Tuesday, September 18, 2018

NEW YORK & MIAMI — September 18, 2018 — The Parkinson’s Foundation announced today that its toll-free Helpline, 1-800-4PD-INFO, will extend its hours, answering calls in English and Spanish, to help make life better for people with Parkinson’s disease (PD) and their families.

Parkinson’s Foundation Hosts Allied Team Training for Parkinson’s in Atlanta
Tuesday, September 11, 2018

NEW YORK & MIAMI—September 11, 2018—The Parkinson’s Foundation today announced the location of its signature professional education program course, Allied Team Training for Parkinson’s, ATTP®, for health care professionals treating patients with Parkinson’s disease, in Atlanta.

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