Caregiver Resources

CAREGIVER ADVOCACY ORGANIZATIONS

National Alliance for Caregiving
http://www.caregiving.org/
Dedicated to providing support to family caregivers and the professionals who help them and to increasing public awareness of issues facing family caregiving.

National Family Caregiver Association
http://www.thefamilycaregiver.org
1-800-896-3650
The National Family Caregivers Association (NFCA) exists to support family caregivers and to speak out publicly for caregivers' needs. Through its services in the areas of education and information, support and validation, public awareness and advocacy, NFCA strives to minimize the disparity between a caregiver's quality of life and that of mainstream Americans.

Well Spouse Foundation
www.wellspouse.org
1-800-838-0879
This non-profit, membership organization provides support to wives, husbands and partners of chronically ill and/or disabled people.   Here you can sign up for a caregiving mentor, or become a mentor for a new caregiver.

Family Caregiver Alliance
http://www.caregiver.org/
FCA serves as the lead agency in California 's system of Caregiver Resource Centers and operates the National Center on Caregiving to advance the development of high-quality, cost-effective support programs for family caregivers in every state in the country.

Children of Aging Parents
www.caps4caregivers.org
800-227-7294

Lotsa Helping Hands
www.lotsahelpinghands.com

OTHER CAREGIVER RESOURCES

Family Caregiving 101
www.familycaregiving101.org
Find assistance, answers, new ideas and helpful advice.

Strength for Caring
www.StrengthForCaring.com 
Site for family caregivers sponsored by Johnson & Johnson.

Caregiving.com
www.caregiving.com
Want to know where you are in the six stages of caregiving?  Find out at Caregiving.com, a site that features pages of tools and resources, including online support groups, and a kit for the new caregiver.

…And Thou Shalt Honor
http://www.pbs.org/thoushalthonor/
The site for the acclaimed PBS caregiving documentary …And Thou Shalt Honor provides a variety of caregiving tools and resources.

Agingcare.com
The Community for Caregivers
http://www.agingcare.com

FINDING LOCAL RESOURCES

Eldercare Locator
www.eldercare.gov
1-800-677-1116
Supported by the Administration on Aging, this site links visitors to services for elders and/or disabled people in their local communities.  Caregivers can also speak to an information specialist by calling the toll-free Eldercare Locator service 1-800-677-1116.

National Family Caregiver Support Program Resource Room
http://www.aoa.gov/AoARoot/AoA_Programs/HCLTC/Caregiver/index.aspx
The Caregiver Resource Room is where families, caregivers, and professionals can find information about The National Family Caregiver Support Program, including: where you can turn for support and assistance, and providing services to caregivers.

The National Private Duty Association (NPDA)
www.privatedutyhomecare.org
National Private Duty Association (NPDA) is a non-profit national voice for organizations that provide private duty home care services and an advocate for services which benefit the consumers for whom they care:  seniors, children, persons with disabilities, those with chronic health conditions and anyone whose quality of life can be improved by having a care worker help in their home.

National Adult Day Services Association
www.nadsa.org
1-800-422-9046

General information about Medicare.

Medicare Rights Center
www.medicarerights.org
Having difficulties dealing with the health insurance maze?  For those who have questions or problems regarding coverage, this not-for-profit, non-governmental website can provide some answers and suggestions.

Department of Veteran's Affairs
www.va.gov
1-800-827-1000

Social Security Disability
www.ssa.gov
1-800-722-1213

GERIATRIC CARE MANAGERS

National Association of Geriatric Care Managers
http://www.caremanager.org/

END-OF-LIFE CARE

National Hospice Organization
www.nho.org
1-800-658-8898

Last Acts Palliative Care Resource Center
http://lastacts.org/
Last Acts is the largest campaign to improve care and caring near the end of life and is funded by The Robert Wood Johnson Foundation. This section of the Last Acts website focuses on practical information and tools on palliative care for both family members and health care professionals.

Aging With Dignity
www.agingwithdignity.org
A non-profit web site that provides practical information, advice and legal tools that can help you ensure that your wishes and those of your loved ones will be respected.  Includes information about the Five Wishes document that helps you express how you want to be treated if you are seriously ill and unable to speak for yourself.

LONG TERM CARE

Mr. Long Term Care
www.mr-longtermcare.com
This site features a variety of resources about long term care and long term care insurance.

LEGAL/FINANCIAL/MEDICATION ASSISTANCE

National Association of Elder Law Attorneys
www.naela.org

The Medicine Program
http://themedicineprogram.com
The Medicine Program is a volunteer organization that helps get patients on pharmaceutical medication assistance programs.

Together Rx
http://www.togetherrx.com/
Free prescription savings card for qualified Medicare enrollees.

Parkinson’s Information and Exchange Network Online (P-I-E-N-O)
http://www.parkinsons-information-exchange-network-online.com/parkmail/maillist.html
An international e-mail list and website about Parkinson disease.

CARE-Caregivers List
Because CARE is a closed list intended primarily for caregivers, please email your request to join to list owner Camilla Flintermann at flintec@muohio.edu.  It is helpful to tell briefly what your "PD/CG situation" is, and to indicate where you live. You will be added, notified, and sent additional information when you are welcomed to this "virtual support group."