National Outreach Network

NPF’s national outreach program is recognized as one of the most successful and expansive programs launched in the United States to provide health care information to under-served communities. To date, with strong support from the Medtronic Foundation, national outreach has reached over 3 million people in medically underserved communities. The program seeks to educate community health care providers and patients about Parkinson’s disease by disseminating consumer empowerment materials such as multi-lingual brochures, participating in community education and media events and training programs for health care providers.

While focused on serving the underserved since its inception, NPF consolidated its outreach programs in 2003, launching an effort drawing from across the centers and chapters network to help people traditionally outside the reach of expert PD care.  This coordinated effort now focuses on:

  1. Building partnerships with national organizations which have extensive community-based networks providing services to medically underserved groups.
  2. Training front-line providers to ensure that all persons living with Parkinson's disease (PD) receive the best care possible and empowerment resources at their local points of service.
  3. Developing consumer empowerment materials to help families affected by Parkinson's disease.
  4. Training regional representatives in key topics around forming partnerships and outreach work through webinars and other training opportunities.
  5. Conducting Leadership Dialogues with administrators and program directors to raise awareness to the complexity of Parkinson's care and the need for more responsive and integrated systems of care and support.

NPF is now working with its initial partners, the National Area Health Education Center Organization (NAO-AHEC), the National Alliance for Hispanic Health and community health center networks, each of which serves millions of individuals and families in diverse, rural and medically underserved communities.  When people call our helpline, we refer them to resources available in their community regardless of the sponsoring organization.  Our goal is to ensure the best care is available.

Through these national partnerships, NPF Centers develop relationships at regional and state levels, to help empower consumers dealing with Parkinson’s and to “get the word out” to the general public about Parkinson's disease.

If you need help or want to help advance Parkinson’s care in your community, please contact us.  We can help you to improve PD care by sharing with you an array of materials developed specifically with the medically underserved in mind:
 

Need something else? Call our helpline at 1-800-4PD-INFO (473-4636) to learn about other resources.

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